When Jonno was diagnosed with Common Variable Immunodeficiency (CVID) in early 2023, it came as a complete surprise. Aside from the occasional cold that seemed to linger longer than expected, he considered himself healthy and had never even heard of immunodeficiency....
For Holly, life has always involved balancing big dreams with the realities of living with a primary immunodeficiency. Diagnosed with hypogammaglobulinemia in her early twenties, she has spent nearly half her life navigating treatments, hospital stays, and learning...
Thomas has spent most of his life being unwell. From just three months old, he was constantly battling chest infections, with much of his childhood shaped by sickness, hospital visits, and unanswered questions. Growing up in New Zealand, his family struggled to find...
This year, IDFA’s Rare Disease Day campaign brought together schools, families, advocates, and communities across the country to help raise awareness of primary immunodeficiencies (PI) and the experiences of those living with rare diseases. At the heart of the...
When baby Eva was just four months old, her mum Alice and dad Dan noticed something wasn’t right. What began as simple formula feeding quickly turned into months of unexplained symptoms. By five to six months, Eva was experiencing persistent diarrhoea, yet every stool...
