Share Your Story
Every member has an important story to share
By sharing your story, you can help others living with an immunodeficiency or caring for someone who is, while helping IDFA raise awareness of the many different experiences within our community.
Book a conversation with the IDFA team to share your story.
To get started, simply click the link below to choose a time that suits you. The booking calendar will show IDFA’s available times, and once you select a time, the interview will be added to both your calendar and the IDFA team’s calendar. You’ll receive a confirmation email with all the details you need.
The conversation will take place via Microsoft Teams (or phone if preferred), and you can join using the link provided in your booking confirmation.
During the call, we’ll guide you through a series of questions about your journey — whether you’re living with an immunodeficiency yourself, or caring for a family member or loved one. We’ll talk about your experiences, challenges, milestones, and the moments that have shaped your journey. There’s no need to prepare or write anything beforehand; we’ll guide you every step of the way and make sure the conversation feels comfortable and relaxed.
After the interview, the IDFA team will write your story and send you a draft to review. You’ll have the opportunity to provide feedback, make changes, and approve the final version before it is shared with the community.
We welcome members of all ages, backgrounds, and experiences to share their story. Every journey is unique, and by sharing yours, you can help raise awareness, foster connection, and remind others in the immunodeficiency community that they are not alone.
Ready to share your story? Click below to book a time with the IDFA team.
Book a Time with IDFA
Take a look at some of our latest member stories below
Jonno’s Story
To make weekly infusions easier, Jonno created a dedicated treatment space at home, keeping all of his equipment organised and, in the early days, relying on a simple step-by-step checklist until the routine became second nature.
Holly’s Story
Through resilience, self-advocacy and a determination to embrace every opportunity, Holly continues to build a life that’s full of purpose, creativity and connection—proving that while immunodeficiency is part of her story, it is far from the whole story.
Thomas’ Story
Thomas has spent most of his life being unwell. From just three months old, he was constantly battling chest infections, with much of his childhood shaped by sickness, hospital visits, and unanswered questions.