News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
June 26 Newsletter
May 26 Newsletter
April 26 Newsletter
Latest IDFA Updates
Rare Disease Day 2026 Brings Communities Together Across Australia
This year, IDFA’s Rare Disease Day campaign brought together schools, families, advocates, and communities across the country to help raise awareness of primary immunodeficiencies (PI) and the experiences of those living with rare diseases.
World PI Week 2025: Raising Voices, Building Awareness and Walking Together
World Primary Immunodeficiency Week 2025 was a meaningful opportunity to unite our community, elevate awareness, and spotlight the lived experiences of people living with primary immunodeficiencies (PI).
Rare Disease Day 2025: A Campaign That Made a Difference
IDFA’s Rare Disease Day 2025 campaign was a resounding success, raising awareness, fostering connections, and amplifying the voices of those living with primary...
Podcasts
Live and Learn
25 Nov 2024
‘Ep.13: Immune Deficiencies Foundation Australia’
Too Peas in a Podcast
13 March 2024
‘Louise talks about her little bumblebee Isabelle’
Media Releases
Calls for Earlier Diagnosis as Canberra Mother Shares Rare Disease Journey
To mark World Primary Immunodeficiency (PI) Week (April 22–29), the Immune Deficiencies Foundation Australia (IDFA) is highlighting the critical role healthcare professionals play in recognising and managing primary immunodeficiencies, and the urgent need for earlier diagnosis of these complex conditions impacting more than 6 million people worldwide
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Local School Helps Raise Awareness for Students Living with Rare Diseases
More than two million Australians live with a rare disease, and each year, the Immune Deficiencies
Foundation Australia (IDFA) calls on communities to come together, spread awareness, and engage in conversations about rare diseases such as immunodeficiencies.
This year, a local school, California Gully Primary School, is working to raise awareness of rare diseases.
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Local Not-For-Profit Hosts ‘Plasma Party’
In recognition of International Plasma Awareness Week, Immune Deficiencies Foundation Australia (IDFA) is joining forces with Lifeblood Australia to host a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October.
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Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
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World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
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International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.