To make weekly infusions easier, Jonno created a dedicated treatment space at home, keeping all of his equipment organised and, in the early days, relying on a simple step-by-step checklist until the routine became second nature.

Through resilience, self-advocacy and a determination to embrace every opportunity, Holly continues to build a life that’s full of purpose, creativity and connection—proving that while immunodeficiency is part of her story, it is far from the whole story.

Thomas has spent most of his life being unwell. From just three months old, he was constantly battling chest infections, with much of his childhood shaped by sickness, hospital visits, and unanswered questions.

When baby Eva was just four months old, her mum Alice and dad Dan noticed something wasn’t right. What began as simple formula feeding quickly turned into months of unexplained symptoms. By five to six months, Eva was experiencing persistent diarrhoea, yet every stool sample came back clear. Their GP couldn’t find an answer.

For Alison, caring is not just something she does—it’s who she is. As a mother to two teenage daughters living with Common Variable Immunodeficiency (CVID), her life is stitched together with illness, resilience, and a deep love for her husband and daughters.

As a paediatric intensive care nurse and mother, Shaya balances her career with caring for her young son, who lives with hypogammaglobulinemia and other complex health needs. Daily life is filled with therapies, appointments, and careful health monitoring, alongside the financial strain of ongoing treatments.