After many years of campaigning, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country, and most states and territories are already underway. This webinar provides important updates for both patient members and health professional working with parents of babies with an abnormal SCID NBS test result. […]
To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg, the plasma journey from donor to recipient managed by Lifeblood, and tips to share your story to promote plasma donation. Keynote Speakers Jo Cameron National Blood Authority - Director Commercial Blood Products […]
There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. This webinar will focus on practical ways male members living with a PI or caring for a child with a PI, can maintain a healthy lifestyle and mental wellbeing. Keynote Speakers Dr Karuna Keat – Immunologist Mitch […]
Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; how the insurance program works, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. […]
Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. The […]
Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with […]
Many members experience challenges managing their gut health. This may include managing gut disorders, food intolerances, microflora imbalances with medication use, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian […]
This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]
This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the […]
This webinar will focus on practical ways to navigate your energy levels, understand your personal self-care areas, communicate your self-care needs, and manage day to day hidden anxiety. We are […]
Want to know more about ways to mix it up and add more self-care but don’t know what that really looks like for you? Want to explore what it really means to live your best life and stay well? Then this webinar is for you!
This webinar will focus on raising awareness among health and community care professionals about the lived experience and self-management and wellbeing support needs of people living with a primary and […]