Webinar

There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. This webinar will focus on practical ways male members living with a PI or caring for a child with a PI, can maintain a healthy lifestyle and mental wellbeing. Keynote Speakers Dr Karuna Keat – Immunologist Mitch […]

Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; how the insurance program works, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. […]

Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. The […]

Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with […]

This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]

This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.

This webinar will focus on practical ways to navigate your energy levels, understand your personal self-care areas, communicate your self-care needs, and manage day to day hidden anxiety. We are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about […]

Want to know more about ways to mix it up and add more self-care but don’t know what that really looks like for you? Want to explore what it really means to live your best life and stay well? Then this webinar is for you!

This webinar will focus on raising awareness among health and community care professionals about the lived experience and self-management and wellbeing support needs of people living with a primary and secondary immunodeficiency to improve their quality of life. We are inviting a panel of members Javeria, Kimmy, Briana, Tanielle to respond to questions from General […]

This webinar will focus on providing an update for members about SCIg access nationally and supporting you to make the most of SCIg as a treatment option. We are inviting Shay Logue from the National Blood Authority (NBA) to provide an overview of the current patient funding arrangements for SCIg and the process to access […]

Let’s celebrate the recent National Carers Week with a focus on self-care and spotlight on IDFA Carers. This webinar will highlight: Aspects of carer wellbeing and an outline on how to navigate the Carer Gateway to find a variety of services and supports specific to carers. A practical approach to self-care to help with you […]