This webinar will focus on practical ways to navigate your energy levels, understand your personal self-care areas, communicate your self-care needs, and manage day to day hidden anxiety. We are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about […]
IDFA Community Catchups are informal, zero-expectation, member-led spaces where our members can come and connect with other humans that know what they're going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl.
IDFA Community Catchups are informal, zero-expectation, member-led spaces where our members can come and connect with other humans that know what they're going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl.
IDFA Community Catchups are informal, zero-expectation, member-led spaces where our members can come and connect with other humans that know what they're going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl.
This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
Gene Therapy and SCID Invitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study. The SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. This month, we are inviting all SCID […]
This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]
Many members experience challenges managing their gut health. This may include managing gut disorders, food intolerances, microflora imbalances with medication use, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian […]
Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with […]
Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. The […]
Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; how the insurance program works, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. […]
There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. This webinar will focus on practical ways male members living with a PI or caring for a child with a PI, can maintain a healthy lifestyle and mental wellbeing. Keynote Speakers Dr Karuna Keat – Immunologist Mitch […]