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X-WR-CALDESC:Events for IDFA
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240815T190000
DTEND;TZID=Australia/Melbourne:20240815T200000
DTSTAMP:20240711T053213Z
CREATED:20240711T053213Z
LAST-MODIFIED:20240711T053213Z
UID:10000350-1723748400-1723752000@idfa.org.au
SUMMARY:YAM Conversations: Healthy Habits
DESCRIPTION:The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences\, struggles\, tips & tricks with other YAMs. Sessions happen every Thursday night in August\, 7pm – 8pm AEST. \nThis session will invite conversations on exploring healthy habits\, such as movement\, nutrition\, sleep and managing pain. \nThe full list of topics for our YAM Conversation series are: \n\nBattling Burnout – August 1\nSocialising Safely – August 8\nHealthy Habits – August 15\nMindfulness Matters – August 22\nMedical Management – August 29
URL:https://idfa.org.au/event/yam-conversations-healthy-habits/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Member Mixer
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/07/Title_-Healthy-Habits.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240814T173000
DTEND;TZID=Australia/Melbourne:20240814T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000073-1723656600-1723660200@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-08-14/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240808T190000
DTEND;TZID=Australia/Melbourne:20240808T200000
DTSTAMP:20240711T053239Z
CREATED:20240711T052336Z
LAST-MODIFIED:20240711T053239Z
UID:10000348-1723143600-1723147200@idfa.org.au
SUMMARY:YAM Conversations: Socialising Safely
DESCRIPTION:The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences\, struggles\, tips & tricks with other YAMs. Sessions happen every Thursday night in August\, 7pm – 8pm AEST. \nThis session will invite conversations on building and maintaining social relationships\, managing fatigue in social settings and optimising communications with friends and family. \nThe full list of topics for our YAM Conversation series are: \n\nBattling Burnout – August 1\nSocialising Safely – August 8\nHealthy Habits – August 15\nMindfulness Matters – August 22\nMedical Management – August 29
URL:https://idfa.org.au/event/yam-conversations-socialising-safely/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Member Mixer
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/07/Title_-Socialising-Safely.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240807T190000
DTEND;TZID=Australia/Melbourne:20240807T200000
DTSTAMP:20240708T215136Z
CREATED:20240708T214647Z
LAST-MODIFIED:20240708T215136Z
UID:10000345-1723057200-1723060800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update – Patient Perspectives on Immunodeficiencies
DESCRIPTION:This webinar will focus on raising awareness among health and community care professionals about the lived experience and self-management and wellbeing support needs of people living with a primary and secondary immunodeficiency to improve their quality of life. \nWe are inviting a panel of members Javeria\, Kimmy\, Briana\, Tanielle to respond to questions from General Practitioner Dr Sara Yusef and Clinical Nurse Consultant (TBA). \nWe will also be showcasing some useful resources for health professionals to find out more about primary and secondary immunodeficiencies.
URL:https://idfa.org.au/event/immunodeficiency-insights-update-patient-perspectives-on-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/07/Webinar-ZoomWebsite-Banner-2024-4.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240807T173000
DTEND;TZID=Australia/Melbourne:20240807T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000072-1723051800-1723055400@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-08-07/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240801T190000
DTEND;TZID=Australia/Melbourne:20240801T200000
DTSTAMP:20240711T052547Z
CREATED:20240711T051955Z
LAST-MODIFIED:20240711T052547Z
UID:10000347-1722538800-1722542400@idfa.org.au
SUMMARY:YAM Conversations: Battling Burnout
DESCRIPTION:The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences\, struggles\, tips & tricks with other YAMs. Sessions happen every Thursday night in August\, 7pm – 8pm AEST. \nThis session will invite conversations on mindfulness\, strategies to help promote mental health and wellbeing and developing a mental health action plan. \nThe full list of topics for our YAM Conversation series are: \n\nBattling Burnout – August 1\nSocialising Safely – August 8\nHealthy Habits – August 15\nMindfulness Matters – August 22\nMedical Management – August 29
URL:https://idfa.org.au/event/yam-conversations-battling-burnout/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Member Mixer
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/07/Title_-Battling-Burnout.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240731T173000
DTEND;TZID=Australia/Melbourne:20240731T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000071-1722447000-1722450600@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-31/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240724T173000
DTEND;TZID=Australia/Melbourne:20240724T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000070-1721842200-1721845800@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-24/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240717T190000
DTEND;TZID=Australia/Melbourne:20240717T200000
DTSTAMP:20240625T031546Z
CREATED:20240625T031546Z
LAST-MODIFIED:20240625T031546Z
UID:10000083-1721242800-1721246400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Tips for Living Well – Young Adults
DESCRIPTION:In this webinar we invite Dr Luke Droney an Immunologist who works with young people to share his insights on ways young people can navigate self-management and self-care for more balance\, and answer your questions about transitioning to adult care and practical ways to support your immune health. \nJanet Burke a counsellor for young people with chronic conditions will also share her insights and what she has learned from young people about staying well. We will also hear from Young Adult Member about their tips moving through study\, relationships and work while supporting their wellbeing living with an immunodeficiency.
URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-young-adults/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/06/Webinar-ZoomWebsite-Banner-2024-3.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240717T173000
DTEND;TZID=Australia/Melbourne:20240717T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000069-1721237400-1721241000@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-17/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240710T173000
DTEND;TZID=Australia/Melbourne:20240710T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000068-1720632600-1720636200@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-10/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240703T173000
DTEND;TZID=Australia/Melbourne:20240703T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000067-1720027800-1720031400@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-03/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240626T190000
DTEND;TZID=Australia/Melbourne:20240626T200000
DTSTAMP:20240522T221728Z
CREATED:20240522T221728Z
LAST-MODIFIED:20240522T221728Z
UID:10000065-1719428400-1719432000@idfa.org.au
SUMMARY:Immunodeficiency Insights: Tips for Living Well – Anxiety and Wellbeing
DESCRIPTION:This webinar will focus on practical ways to navigate your energy levels\, understand your personal self-care areas\, communicate your self-care needs\, and manage day to day hidden anxiety. \nWe are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about staying well. Members Leigh Derby and (Member TBA) will also share their tips for managing overwhelm and self care for wellbeing.
URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-anxiety-and-wellbeing/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/05/Webinar-ZoomWebsite-Banner-2024-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240626T173000
DTEND;TZID=Australia/Melbourne:20240626T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000042-1719423000-1719426600@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-26/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240619T173000
DTEND;TZID=Australia/Melbourne:20240619T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000041-1718818200-1718821800@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-19/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240612T173000
DTEND;TZID=Australia/Melbourne:20240612T183000
DTSTAMP:20250113T210536Z
CREATED:20240611T014212Z
LAST-MODIFIED:20250113T210536Z
UID:10000040-1718213400-1718217000@idfa.org.au
SUMMARY:IDFA Community Catchup - All Members
DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here!
URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-12/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Online Group Chat
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240530T190000
DTEND;TZID=Australia/Melbourne:20240530T200000
DTSTAMP:20240429T031913Z
CREATED:20240429T031913Z
LAST-MODIFIED:20240429T031913Z
UID:10000060-1717095600-1717099200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Working with an Immunodeficiency
DESCRIPTION:This webinar will focus on working with employers to manage living with an immunodeficiency\, staying well\, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members\, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
URL:https://idfa.org.au/event/immunodeficiency-insights-working-with-an-immunodeficiency/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/Webinar-ZoomWebsite-Banner-2024-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240522T190000
DTEND;TZID=Australia/Melbourne:20240522T200000
DTSTAMP:20240514T011729Z
CREATED:20240514T003707Z
LAST-MODIFIED:20240514T011729Z
UID:10000063-1716404400-1716408000@idfa.org.au
SUMMARY:Gene Therapy and SCID
DESCRIPTION:Gene Therapy and SCID\nInvitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study.\nThe SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. \nThis month\, we are inviting all SCID families to attend this meeting as we will be joined by – Dr Lorna Mc Leman\, Research Fellow\, Murdoch Children’s Research Institute\, Melbourne. Lorna will be outlining a current consumer study about Gene Therapies. We were fortunate enough to hear some of these insights at the recent National conference we held in March\, and are looking forward to the next updates. The meeting will also provide an opportunity for IDFA members to be involved in the study as either participants or as Consumer Advisors so please come along to hear about this unique opportunity to be involved in research. \n\nMeeting Agenda \n\nWelcome and Apologies\nPrevious Meeting Actions\n\nCampaign timeline\nList of families and campaign supporters\nChildren’s Book – Carer Survey\n\n\nGuest Speaker – Dr Lorna Mc Leman\nState/Territories Campaign Update\nSCID Connect Support Group\n\nUpdate\nMeeting Facilitator\n\n\nAchievement of National SCID NBS\n\nIDFA media and other activities\n\n\nOther Business\n\nCampaign Update – Access to SCIg Treatment\n\n\nNext Meeting
URL:https://idfa.org.au/event/gene-therapy-and-scid/
LOCATION:Online via Zoom\, Australia
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/05/Member-Meet-Up-Event-Banners-websiteemails-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240418T190000
DTEND;TZID=Australia/Melbourne:20240418T200000
DTSTAMP:20240320T222058Z
CREATED:20240320T222058Z
LAST-MODIFIED:20240320T222058Z
UID:10000056-1713466800-1713470400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Ask IDFA
DESCRIPTION:This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC)\, Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. \nYou can also post your questions to members of the Medical Advisory Committee to be answered during the webinar.\nMembers will also be asking common member questions to showcase the full range of topics you can Ask IDFA! Join us! \nIDFA Advisory Panel Speaker Geraldine Dunne \nExpert Presenters (Members of MAC): Dr Melanie Wong Dr Luke Droney \nIDFA Member Panel: Briana Corry Adam Friederich
URL:https://idfa.org.au/event/immunodeficiency-insights-ask-idfa/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/03/Webinar-ZoomWebsite-Banner-2024-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240321T190000
DTEND;TZID=Australia/Melbourne:20240321T200000
DTSTAMP:20240226T225358Z
CREATED:20240226T225323Z
LAST-MODIFIED:20240226T225358Z
UID:10000016-1711047600-1711051200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update: Gut Health and Immunodeficiencies
DESCRIPTION:Many members experience challenges managing their gut health. This may include managing gut disorders\, food intolerances\, microflora imbalances with medication use\, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian Chiara Miglioretto are invited to share their insights and answer your gut health questions. \nExpert Presenters:\nAssoc. Professor Dr Jason Tye-Din – Gastroenterologist/Researcher\nChiara Miglioretto (Gut Friendly Dietitians) – Dietitian \nIDFA Member Insights:\nKelly Lambert – Carer of Child with PI and Dietitian
URL:https://idfa.org.au/event/immunodeficiency-insights-update-gut-health-and-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240229T190000
DTEND;TZID=Australia/Melbourne:20240229T200000
DTSTAMP:20240129T214647Z
CREATED:20240129T214647Z
LAST-MODIFIED:20240129T214647Z
UID:10000013-1709233200-1709236800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Voices of IDFA Resource Launch
DESCRIPTION:Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. \nThis webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with immunodeficiencies. \nThis webinar will also have a special focus on the role of member stories \nKeynote Speakers\nCarolyn Dews – IDFA – CEO\nEstela Gimenez – IDFA – Programs Coordinator \nIDFA Member Insights:\nLouise Grant\nKylie Downie
URL:https://idfa.org.au/event/immunodeficiency-insights-voices-of-idfa-resource-launch/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/01/Webinar-ZoomWebsite-Banner-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240201T190000
DTEND;TZID=Australia/Melbourne:20240201T200000
DTSTAMP:20240115T213531Z
CREATED:20231214T041438Z
LAST-MODIFIED:20240115T213531Z
UID:10000011-1706814000-1706817600@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update: COVID-19 Variants and Vaccinations
DESCRIPTION:Learn more about the COVID-19 booster vaccination program\, variants\, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. \nThe webinar will feature health professionals and member insights. \nKeynote Presenter:\nDr Katrina Randall \nIDFA Member Insights:\nBarbara O’Neill \nExpert Speaker:\nDr Emily Edwards
URL:https://idfa.org.au/event/immunodeficiency-insights-update-covid-19-variants-and-vaccinations/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/12/Webinar-ZoomWebsite-Banner-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231212T190000
DTEND;TZID=Australia/Melbourne:20231212T200000
DTSTAMP:20231114T003249Z
CREATED:20231114T003249Z
LAST-MODIFIED:20231114T003249Z
UID:10000010-1702407600-1702411200@idfa.org.au
SUMMARY:December PI Education Webinar: NDIS and Primary Immunodeficiencies
DESCRIPTION:Many members facing significant challenges living with\, or caring for a person with\, a Primary Immunodeficiency\, have found the NDIS process very challenging. \nMandy Drain\, an NDIS Coordinator will outline; how the insurance program works\, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. \nKeynote Speakers \n\nMandy Drain – Taylor Made Outcomes
URL:https://idfa.org.au/event/december-pi-education-webinar-ndis-and-primary-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/11/Webinar-ZoomWebsite-Banner-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231130T190000
DTEND;TZID=Australia/Melbourne:20231130T200000
DTSTAMP:20231012T041147Z
CREATED:20231012T040424Z
LAST-MODIFIED:20231012T041147Z
UID:10000007-1701370800-1701374400@idfa.org.au
SUMMARY:November PI Education Webinar: Men's Health and Primary Immunodeficiencies
DESCRIPTION:There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. \nThis webinar will focus on practical ways male members living with a PI or caring for a child with a PI\, can maintain a healthy lifestyle and mental wellbeing. \nKeynote Speakers \n\nDr Karuna Keat – Immunologist\nMitch Durbridge – Clinical Psychologist\n\nIDFA Member Insights \n\nAdam Friederich\nRichard Price\nDale Dominey-Howes
URL:https://idfa.org.au/event/november-pi-education-webinar-mens-health-primary-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2023/10/Webinar-ZoomWebsite-Banner.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231026T190000
DTEND;TZID=Australia/Melbourne:20231026T200000
DTSTAMP:20230919T021751Z
CREATED:20230919T021751Z
LAST-MODIFIED:20230919T021751Z
UID:10000006-1698346800-1698350400@idfa.org.au
SUMMARY:October PI Education Webinar: Plasma Update and Donation Advocacy
DESCRIPTION:To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg\, the plasma journey from donor to recipient managed by Lifeblood\, and tips to share your story to promote plasma donation. \nKeynote Speakers \n\nJo Cameron National Blood Authority – Director Commercial Blood Products\nSally Deveson Lifeblood ACT – Community Relations Officer\n\nIDFA Member Insights \n\nHayley Teasdale – Lifeblood Volunteer and IDFA member
URL:https://idfa.org.au/event/october-pi-education-webinar-plasma-update-and-donation-advocacy/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/09/Webinar-ZoomWebsite-Banner-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230926T190000
DTEND;TZID=Australia/Melbourne:20230926T200000
DTSTAMP:20230904T222655Z
CREATED:20230904T222655Z
LAST-MODIFIED:20230904T222655Z
UID:10000005-1695754800-1695758400@idfa.org.au
SUMMARY:September PI Education Webinar:  Newborn Screening for SCID – A Brave New World
DESCRIPTION:After many years of campaigning\, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country\, and most states and territories are already underway. This webinar provides important updates for both patient members and health professional working with parents of babies with an abnormal SCID NBS test result. \nKeynote Presenter: Dr Kahn Preece\, NSW Paediatric Immunologist \nMember Insights: Louise Grant
URL:https://idfa.org.au/event/september-pi-education-webinar-newborn-screening-for-scid-a-brave-new-world/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230829T190000
DTEND;TZID=Australia/Melbourne:20230829T200000
DTSTAMP:20230801T061527Z
CREATED:20230713T040345Z
LAST-MODIFIED:20230801T061527Z
UID:10000004-1693335600-1693339200@idfa.org.au
SUMMARY:August PI Education Webinar: Young Adult Members Transitioning into Adult Care
DESCRIPTION:Young Adult Members Transitioning into Adult Care \n\nAre you a young adult member moving into the adult health care system?\nAre you a carer member wanting to know how to support a young adult making this transition?\n\n\nWe know that often the move into the adult care healthcare system can be particularly stressful and can cause a great deal of anxiety. You may need to start accessing different clinicians possibly in different locations and develop new relationships with less parental involvement. You may also also encounter clinicians who are not very experienced working with young people. Then there’s the expectation to be much more responsible for your treatment plan\, ask questions and self-advocate if you feel your needs are not being met. \nIn this webinar we are inviting Immunologist Dr Alisa Kane and young adult member Zoe Parry to cover some of the key changes you can expect moving into the adult healthcare system\, some common issues young people may face\, areas for self advocacy\, and tips and strategies for a smoother transition.
URL:https://idfa.org.au/event/august-pi-education-webinar-yams-transitioning-into-adult-care/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230727T190000
DTEND;TZID=Australia/Melbourne:20230727T200000
DTSTAMP:20230626T005339Z
CREATED:20230613T024145Z
LAST-MODIFIED:20230626T005339Z
UID:10000003-1690484400-1690488000@idfa.org.au
SUMMARY:PI Education Webinar - GP Awareness of Immunodeficiencies
DESCRIPTION:Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test\, or referral\, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. \nUnfortunately\, GPs can often mistake the warning signs of an immunodeficiency\, leading to complications from ongoing infection\, avoidable hospitalization and deteriorating mental well-being. \nOur next webinar is for both GPs and community members to support earlier detection in our community and promote quality of life: \n\nWhat signs can GPs look for?\nWhat can GPs do to support earlier diagnosis?\nWhat can members do to work with their GP to self-advocate and support awareness?\n\nPlease feel free to send any questions or tips to share as a patient working with your GP to IDFA at info@idfa.org.au in advance of the Webinar. Please let us know if you’re interested in briefly presenting your journey with our members.
URL:https://idfa.org.au/event/pi-education-webinar-gp-awareness-of-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/06/Webinars-and-Event_Banners-6.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230627T190000
DTEND;TZID=Australia/Melbourne:20230627T200000
DTSTAMP:20230605T133945Z
CREATED:20230525T041521Z
LAST-MODIFIED:20230605T133945Z
UID:10000002-1687892400-1687896000@idfa.org.au
SUMMARY:PI Education Webinar - Travel Smart with Immunodeficiency
DESCRIPTION:We know that for many members travelling can be an immense challenge. However\, some have been able to enjoy travelling safely with the right planning and support. \nOur next PI Education webinar will include members sharing their travel stories and tips\, and key need-to-know information from a travel industry advocate for people with disabilities. \nPlease let us know any questions and areas of interest to cover in the webinar such as: arranging medications\, immunoglobulin\, and SCIg consumables\, managing medical equipment\, planning an itinerary to manage fatigue\, managing pain or mobility issues\, and making suitable accommodation and travel arrangements. \nIf you would like to share any travel tips with members to stay well and get the most out of their trip – Please reach out! We would love to add your tips to our webinar or\, if interested\, you can be a presenter in the webinar! \nPlease feel free to send any questions to IDFA at info@idfa.org.au in advance of the Webinar so that we can ensure that we are able to provide you with a response.
URL:https://idfa.org.au/event/pi-education-webinar-travelsmart-with-ids/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230504T190000
DTEND;TZID=Australia/Melbourne:20230504T200000
DTSTAMP:20230504T042739Z
CREATED:20230413T053207Z
LAST-MODIFIED:20230504T042739Z
UID:10000001-1683226800-1683230400@idfa.org.au
SUMMARY:Use Your Voice - Self Advocacy
DESCRIPTION:To celebrate World PI Week\, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. \nGuest speakers will share their experiences with self-advocacy and discuss how the toolkit can help. The co-creator of the toolkit will also be on hand to provide insights into the creation and development of this invaluable resource. \nAttendees will have the opportunity to hear from members of the community who have either used self-advocacy techniques to improve their health outcomes and quality of life or feel that these tools will be valuable for them and others going forward. By learning from these experiences\, participants will gain a deeper understanding of how self-advocacy can positively impact their lives and those of their loved ones. \nThe Self-Advocacy Toolkit is a comprehensive resource that provides individuals with a way to take control of their healthcare journey. \nGuest Speakers include: \n\nChristine Jeffery – Vice President IPOPI\, IDFA National Patient Advisory Panel Member and CIRCA Board Member\nLouise Healy – Education and Advocacy Manager at Rare Voices Australia\nGeraldine Dunne – Clinical Nurse Consultant Immunology & Infectious Disease at Sydney Children’s Hospital Network\nIDFA Members
URL:https://idfa.org.au/event/use-your-voice-self-advocacy/
LOCATION:Online via Zoom\, Australia
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/04/Webinars-and-Event_Banners.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
END:VCALENDAR