Useful Links
More information about primary and secondary immunodeficiency, other organisations plus patient and carer support resources.
This list has been compiled to give you more information about primary and secondary immunodeficiency plus related organisations and services. These links are suitable for patients, carers and healthcare professionals.
More Information about Immunodeficiency – Australia
Australasian Society of Clinical Immunology and Allergy (ASCIA)
Discover more information about primary immunodeficiencies, immunoglobulin replacement therapy, SCIg therapy and infusion.
ASCIA's National Immunodeficiency Strategy
The ASCIA National Immunodeficiency Strategy has been developed for Australia and New Zealand. IDFA also participated in the consultation process of the Strategy.
Immunoglobulins and me: Catherine’s Story
Catherine talks about her diagnosis with Common Variable Immunodeficiency (CVID) and experience with intravenous immunoglobulin (IVIg) treatment which allows her to live a healthy and active life.
[Video courtesy of NPS Medicinewise]
Other Primary Immunodeficiency Organisations – Overseas
Related Information Resources and Organisations – Australia
Genetics Information Resources
NSW Government Health – Centre for Genetics Education
Discover some useful fact sheets about genetic conditions, testing and counselling
Rare Disease Organisations
Mental Health Support
Lifeline
If you or someone you know are in crisis please phone Lifeline Australia – 13 11 14
National Disability Insurance Scheme (NDIS)
Information for Carers
Other Government Services
Encourage Others to Donate Plasma
Legal and Financial Support
NDIS - Eligibility and Application Process
Eligibility for financial support through NDIS needs to be determined on a case-by-case basis by the relevant authorities. Our Links page has a list of useful website links.
For information into what financial support you could be eligible for as well as assistance in preparing NDIS applications, we recommend contacting an NDIS representative in your local area:
Offices and contacts in your area | NDIS
Understanding Your Rights At Work
The following links may be of assistance when it comes to understanding your legal rights at work:
Employment conditions – Fair Work Ombudsman
Flexibility in the workplace – Fair Work Ombudsman
Protections at work – Fair Work Ombudsman
Bullying, sexual harassment & discrimination at work – Fair Work Ombudsman
Medicare and Health Insurance Cover
What is and isn’t covered under the Australian Medicare scheme is updated regularly. Individual health care needs can also differ greatly from person to person. The following links may provide you with some further understanding as to what is and isn’t covered under the public and private healthcare space:
What’s covered by Medicare – Medicare – Services Australia
Much like Medicare, private health insurance company policies and packages are updated regularly and are also quite diverse in their coverage. The package type you choose and what is covered within is very much a personal choice and sometimes based on costs. The private health insurance companies will normally talk you through what each package looks like and provide guidance as to what they recommend would be the better choice for your family circumstances.