Useful Links
More information about immunodeficiencies, related organisations, support and resources.
For additional information go to our FAQ’s page or look at our publications page.
On this page
Immunodeficiency Information – Australia
Australasian Society of Clinical Immunology and Allergy (ASCIA)
ASCIA's National Immunodeficiency Strategy
Immunodeficiency Information – International
Immune Deficiencies Foundation New Zealand (IDFNZ)
Immune Deficiency Foundation (America)
Jeffrey Modell Foundation
Rare Disease Organisations
AusPIPS
National Organisation for Rare Disorders (overseas organisation)
Rare Voices Australia
Organisations – Immunodeficiency Related Conditions
Allergy and Anaphylaxis Australia
Allergy and Immunology Foundation of Australasia (AIFA)
Autoimmune Resource and Research Centre (ARRC)
Chron’s and Colitis Australia
Coeliac Australia
Fatigue Clinic UNSW
The Gastroenterological Society of Australia
The Gut Foundation
Health Conditions – Other
ADHD
ADHD Australia
Arthritis
Arthritis Australia
NSW – arthritisnsw.org.au
WA – arthritiswa.org.au
VIC – website not listed
QLD – arthritis.org.au
SA – arthritissa.org.au
TAS – arthritistas.org.au
ACT – arthritisact.org.au
NT – aont.org.au
Asthma
Asthma Australia
Autism
Autism Australia
Blood Products and Plasma
Lifeblood Australia
National Blood Authority
Cancer
Cancer Council
cancer.org.au (and Cancer Council NSW)
VIC – cancervic.org.au
WA – cancerwa.asn.au
QLD – cancerqld.org.au
SA – cancersa.org.au
TAS – cancer.org.au/tas
NT – cancer.org.au/nt
Cancer Research Institute of NSW
COVID-19
Department of Health and Aged Care
Health Direct
Chronic Fatigue Syndrome (Including long COVID)
Emerge Australia
Chronic Fatigue Syndrome Association of Australia
Fibromyalgia
Fibromyalgia Australia
Heart Disease/Cardiovascular Health
Heart Foundation of Australia
Heart Research Institute
Irritable Bowel Syndrome
Irritable Bowel Central – Monash University
Mind Over Gut
Lung Health
Lung Foundation of Australia
Pain
Chronic Pain Australia
Pain Australia
Pain Wise
Genetics Information Resources
Garvan Research Institute of Medical Research
Genetic Alliance Australia
Genetic Support Network Victoria
NSW Government Health – Centre for Genetics Education
Mental Health Support Information
Beyond Blue
Bipolar Australia
COPE (Centre of Perinatal Excellence) Australia
emPRAC - Digital Mental Health
Headspace
Lifeline Australia
Mens Line Australia
PANDA
Phoenix Australia
SANE
Disability and Aged Care Support Information
Disability Australia Hub
Disability Employment Services
Disability Gateway
Disability Support Guide
NDIS
How the NDIS works: ndis.gov.au/understanding/how-ndis-works
What is the NDIS?: ndis.gov.au/understanding/what-ndis
Supports funded by the NDIS: ndis.gov.au/understanding/supports-funded-ndis
Who can help start your plan: ndis.gov.au/participants/using-your-plan/who-can-help-start-your-plan
My Aged Care
Carers – Information and Support
Carers Australia
NSW – carersnsw.org.au
ACT – carerswa.asn.au
SA – carerssa.com.au
QLD – carersqld.com.au
VIC – carersvictoria.org.au
TAS – carerstas.org
Carer Gateway
My Time - Disability Carers
Raising Children Network
Parent Works
Services Australia - Carer Payment
Services Australia - Carer Allowance
Children’s Health Information
AusEE Inc (Tube Aware)
AUSPEN (Australia Parental and Enteral Nutrition) Resources
Health Direct - General Child Health Information
SCID Angels for Life Foundation
Starlight Foundation
Consumer Health and Privacy
Australian Government – Office of the Australian Information Commissioner
Consumer Complaints Commission
Consumer Health Forum
Health Consumers Council of Australia
HealthCare Complaints
NSW: hccc.nsw.gov.au
QLD: oho.qld.gov.au/make-a-complaint
VIC: hcc.vic.gov.au
SA: hcscc.sa.gov.au
TAS: healthcomplaints.tas.gov.au
NT: hcscc.nt.gov.au
Privacy Complaints
Services Australia
Essential Medical Equipment Payment: servicesaustralia.gov.au/individuals/services/centrelink/essential-medical-equipment-payment
Medicare Safety Nets: servicesaustralia.gov.au/individuals/services/medicare/medicare-safety-nets
When you spend a lot on PBS medicines: servicesaustralia.gov.au/individuals/services/medicare/pharmaceutical-benefits-scheme/when-you-spend-lot-pbs-medicines
Services Australia – Health Care Card: servicesaustralia.gov.au/individuals/services/centrelink/health-care-card
Payments for people living with an illness, injury or disability: servicesaustralia.gov.au/living-with-disability
Healthy Lifestyle and Wellbeing Information
Kids Health
Healthy Kids Australia
Raising Children
Falls Prevention
Australia and New Zealand Falls Prevention Society
Department of Health and Aged Care
Physical Activity
Mens Health
Healthy Male
Mens Line Australia
Nutrition
Nutrition Australia
Eat for Health
Department of Health and Aged Care
Dietitian's Association of Australia
Sexual Health and Sexually Transmitted Infections (STIs)
Better Health - STIs
Health Direct - Sexual Health
Family Planning NSW - Resources
Sleep
Sleep Foundation of Australia
Womens Health
Jean Hailes Foundation
Legal and Financial Support
NDIS - Eligibility and Application Process
Eligibility for financial support through NDIS needs to be determined on a case-by-case basis by the relevant authorities.
For information into what financial support you could be eligible for as well as assistance in preparing NDIS applications, we recommend contacting an NDIS representative in your local area:
Understanding Your Rights at Work
The following links may be of assistance when it comes to understanding your legal rights at work:
Employment conditions – Fair Work Ombudsman
Flexibility in the workplace – Fair Work Ombudsman
Protections at work – Fair Work Ombudsman
Bullying, sexual harassment & discrimination at work – Fair Work Ombudsman
Medicare and Health Insurance Cover
What is and isn’t covered under the Australian Medicare scheme is updated regularly. Individual health care needs can also differ greatly from person to person. The following links may provide you with some further understanding as to what is and isn’t covered under the public and private healthcare space:
What’s covered by Medicare – Medicare – Services Australia
Much like Medicare, private health insurance company policies and packages are updated regularly and are also quite diverse in their coverage. The package type you choose and what is covered within is very much a personal choice and sometimes based on costs. The private health insurance companies will normally talk you through what each package looks like and provide guidance as to what they recommend would be the better choice for your family circumstances.