News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
August 26 Newsletter
July 26 Newsletter
June 26 Newsletter
Latest IDFA Updates
Managing your child’s return to the classroom
This information has been provided by IDFA member, teacher and mum of two, Bianca. You can read more about Bianca's story here. Bianca is one of our friendly family support...
Managing your child’s fatigue and over-stimulation when they return to school
This information has been provided by IDFA member, teacher and mum of two, Bianca, to offer you and your child some tips on managing fatigue and overstimulation as they return to...
Back to School Tips for Parents and Carers of PID/SID Children
This information has been provided by an IDFA member to offer you and your child some tips and tools for a smooth transition back to school this year. This IDFA member has...
Podcasts
Live and Learn
25 Nov 2024
‘Ep.13: Immune Deficiencies Foundation Australia’
Too Peas in a Podcast
13 March 2024
‘Louise talks about her little bumblebee Isabelle’
Media Releases
Calls for Earlier Diagnosis as Canberra Mother Shares Rare Disease Journey
To mark World Primary Immunodeficiency (PI) Week (April 22–29), the Immune Deficiencies Foundation Australia (IDFA) is highlighting the critical role healthcare professionals play in recognising and managing primary immunodeficiencies, and the urgent need for earlier diagnosis of these complex conditions impacting more than 6 million people worldwide
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Local School Helps Raise Awareness for Students Living with Rare Diseases
More than two million Australians live with a rare disease, and each year, the Immune Deficiencies
Foundation Australia (IDFA) calls on communities to come together, spread awareness, and engage in conversations about rare diseases such as immunodeficiencies.
This year, a local school, California Gully Primary School, is working to raise awareness of rare diseases.
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Local Not-For-Profit Hosts ‘Plasma Party’
In recognition of International Plasma Awareness Week, Immune Deficiencies Foundation Australia (IDFA) is joining forces with Lifeblood Australia to host a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October.
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Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
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World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
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International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.