News and Media
e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
June 26 Newsletter
May 26 Newsletter
April 26 Newsletter
Latest IDFA Updates
The Immune Deficiencies Foundation of Australia Federal Budget Response
Federal Budget and Australians Living with Immunodeficiencies IDFA has been advocating to the government on behalf of our members for many years now. We are pleased with some of...
Rare Voices Australia Parliamentary Event in Canberra
On Thursday February 29th, Carolyn Dews, IDFA CEO had the privilege of attending the Rare Voices Australia parliamentary event in Canberra. The theme, 'Progress Beyond Policy,'...
Melbourne Member Meet-Up
In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. 'Blossoming Together' was our focus as it...
Podcasts
Live and Learn
25 Nov 2024
‘Ep.13: Immune Deficiencies Foundation Australia’
Too Peas in a Podcast
13 March 2024
‘Louise talks about her little bumblebee Isabelle’
Media Releases
Calls for Earlier Diagnosis as Canberra Mother Shares Rare Disease Journey
To mark World Primary Immunodeficiency (PI) Week (April 22–29), the Immune Deficiencies Foundation Australia (IDFA) is highlighting the critical role healthcare professionals play in recognising and managing primary immunodeficiencies, and the urgent need for earlier diagnosis of these complex conditions impacting more than 6 million people worldwide
READ MORE
Local School Helps Raise Awareness for Students Living with Rare Diseases
More than two million Australians live with a rare disease, and each year, the Immune Deficiencies
Foundation Australia (IDFA) calls on communities to come together, spread awareness, and engage in conversations about rare diseases such as immunodeficiencies.
This year, a local school, California Gully Primary School, is working to raise awareness of rare diseases.
READ MORE
Local Not-For-Profit Hosts ‘Plasma Party’
In recognition of International Plasma Awareness Week, Immune Deficiencies Foundation Australia (IDFA) is joining forces with Lifeblood Australia to host a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October.
READ MORE
Upcoming Events
Important Dates
Rare Disease Day - Last day of February
Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
FIND OUT MORE
World PI Week - 22-29 April
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
FIND OUT MORE
International Plasma Awareness Week - First week of October
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.