IDFA is celebrating Rare Disease Day 2025

Welcome to IDFA

Living with a primary or secondary immunodeficiency?
Do you find yourself looking for extra support and acceptance?
Let’s face it, living with an immunodeficiency impacts on all aspects of your health and lifestyle.

Awareness and Education

We offer a range of informative resources, host regular webinars and run various campaigns to increase awareness and education for Australians living with immunodeficiency.

FIND OUT MORE

Care and Support

We offer a range support initiatives including member meet-ups, group chats and peer mentoring for Australians living with immunodeficiency and their carers.

FIND OUT MORE

Driving Change - Advocacy

We advocate and support research into a range of issues significant to patients with primary and secondary immunodeficiencies.

FIND OUT MORE

Education

Creating Awareness and Education

We offer a range of resources and run campaigns to increase awareness and education for Australians living with immunodeficiency.

Support and Care

Building Community: Care and Support

We offer emotional, social and practical support to Australians living with immunodeficiency through engagement events, support groups and peer-mentoring.

Advocacy

Driving Change: Advocacy

We advocate and support research into a range of issues significant for patients with primary and secondary immunodeficiencies.

About IDFA

IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care.

IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.

Member Stories

Steve’s Story

If it hadn’t been for his plasma donation, Steve wonders if he would have ever discovered his immunodeficiency. This is his story…

Kelly’s Story

Kelly’s second child was born only 18 months after her first, and from birth, she could tell something was not quite right. This is her story…

Carol’s Story

Throughout her life, she has lived in different places and visited may countries, which has changed her life in many ways. This is her story.

Get Involved

Pathways to Giving

You can make a difference in the lives of Australians living with a rare disease.

Pathways to Giving

Become a Member

Join the IDFA community to access a range of resources, events and connect with patients and carers.

Become a Member

Latest Events

We’re developing a range of events for IDFA members. Keep watching our Events page for updates.

Latest Updates

South Australia Member Meet-Up

South Australia Member Meet-Up

Sep 12, 2024 | Member Meeting Wrap-up, News

This September, we travelled to Adelaide to host a member meeting for our South Australian community at the beautiful Rydges in South Park. The event, aptly named “Inspiring...

Western Australia Member Meet-up

Western Australia Member Meet-up

Jun 11, 2024 | Member Meeting Wrap-up, News

This casual member meet-up, aptly named ‘Conversations with IDFA,’ symbolised our community’s commitment to learning about and supporting one another. It was a reflection of our collective growth, resilience, and vibrancy.

Tasmania Member Meet-Up

Tasmania Member Meet-Up

Jun 4, 2024 | Member Meeting Wrap-up, News

In early June, just as winter arrived, we journeyed to the picturesque location of Launceston to host our eagerly anticipated Tasmania Meet-Up. The setting couldn't have been...

« Older Entries

Next Entries »

View all updates

Testimonials

The IDFA has been a great way to connect with other families with similar experiences, which has allowed access to a wealth of knowledge. The IDFA annual conference was also an amazing opportunity to learn and provided so much information. The IDFA has offered so much support, including Carers' events and resource material, which are great to give to kids' schools. Their Facebook groups have been a great place to ask questions and advice. So pleased to have found the IDFA, and would 100% recommend it to anyone seeking advice, support, information or resources.

Javeria, NSW

When I got sick in 2011 I felt so alone, I had never heard of CVID. Then it was recommended to contact IDFA. I found people all over Australia that were the same as me. It has been a godsend.

Beth, VIC

My name is Row and I am from NSW. After years of recurrent infections saw an amazing new immunologist who diagnosed me with a rare primary immunodeficiency. I found IDFA via Google and have found the support and resources from IDFA amazing. IDFA very quickly sent me a pack of great resources and also some resources for my GP. The Facebook group has been great, have learnt so much and receiving a phone call to check in made me feel supported and welcomed.

Row, NSW