IDFA is celebrating Rare Disease Day 2025
Creating Awareness and Education
We offer a range of resources and run campaigns to increase awareness and education for Australians living with immunodeficiency.
Building Community: Care and Support
We offer emotional, social and practical support to Australians living with immunodeficiency through engagement events, support groups and peer-mentoring.
Driving Change: Advocacy
We advocate and support research into a range of issues significant for patients with primary and secondary immunodeficiencies.
About IDFA
IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with our community-focussed model of care.
IDFA assists in achieving improved patient outcomes and quality of life. With the support of our medical advisory panel and through national and international relationships IDFA is a respected organisation within the medical and patient community.
Member Stories
Get Involved
Pathways to Giving
You can make a difference in the lives of Australians living with a rare disease.
Become a Member
Join the IDFA community to access a range of resources, events and connect with patients and carers.
Latest Events
We’re developing a range of events for IDFA members. Keep watching our Events page for updates.
Latest Updates
Update to Member Services due to COVID-19
Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Sharon relies on regular intravenous immunoglobulin therapy (IVIg) to keep infections at bay and delights in being a grandmother.