BEGIN:VCALENDAR VERSION:2.0 PRODID:-//IDFA - ECPv6.16.5.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:IDFA X-ORIGINAL-URL:https://idfa.org.au X-WR-CALDESC:Events for IDFA REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Australia/Melbourne BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20220402T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20221001T160000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20230401T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20230930T160000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20240406T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20241005T160000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+1100 TZOFFSETTO:+1000 TZNAME:AEST DTSTART:20250405T160000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 TZNAME:AEDT DTSTART:20251004T160000 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240731T173000 DTEND;TZID=Australia/Melbourne:20240731T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000071-1722447000-1722450600@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-31/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240728T100000 DTEND;TZID=Australia/Melbourne:20240728T120000 DTSTAMP:20240620T001138Z CREATED:20240620T000743Z LAST-MODIFIED:20240620T001138Z UID:10000082-1722160800-1722168000@idfa.org.au SUMMARY:Coffee Club in Sefton Park DESCRIPTION:Member Host: Brendon\nDate and Time: Sunday\, 28 July 10.00am – 12.00pm\nLocation: Sefton Park\, SA\nVenue: The Barun \nMeet other IDFA members at your local IDFA Coffee Club! \nCome along for a cuppa\, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed\, member-led spaces that allow our members to come together outside of IDFA-led events like the National IDFA Conference or our State Member Meetups. All IDFA members are welcome. \nRSVP below to receive a $5 voucher to help cover the cost of your drink. \nIs this event too far to travel for you? Consider hosting an IDFA Coffee Club of your own! Find out more here. \n\n\n \n \n Coffee Club RSVP\n \n \n Δ\n \n \n\n \n EmailThis field is for validation purposes and should be left unchanged.Which IDFA Coffee Club are you attending?(Required)\n \n Canberra ACT\n \n \n Campbelltown NSW\n \n \n Wollongong NSW\n Your DetailsWhat is Your Name?(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Are you an IDFA member?(Required)\n \n Yes\n \n \n No\n Email(Required)Contact Number(Required)Address(Required)This field is hidden when viewing the formDietary Requirements(Required)\n \n No dietary requirements\n \n \n Vegetarian\n \n \n Vegan\n \n \n Pescatarian\n \n \n Gluten-free / Coeliac\n \n \n Dairy-free / Lactose-free\n \n \n Egg-free\n \n \n Pork-free\n \n \n Beef-free\n \n \n Halal\n \n \n Kosher\n \n \n Low FODMAP\n \n \n Diabetic-friendly / Low sugar\n \n \n Low sodium\n \n \n Mild/low spice\n \n \n \n Please complete\, as on occasion IDFA will host and provide food at these events. Dietary Requirements(Required)\n \n \n Vegan\n \n \n \n Pescatarian\n \n \n \n Gluten-free / Coeliac\n \n \n \n Dairy-free / Lactose-free\n \n \n \n Egg-free\n \n \n \n Pork-free\n \n \n \n Beef-free\n \n \n \n Halal\n \n \n \n Kosher\n \n \n \n Low FODMAP\n \n \n \n Diabetic-friendly / Low sugar\n \n \n \n Low sodium\n \n \n \n Mild/low spice\n \n \n \n None\n \n \n \n Other\n Please complete\, as on occasion IDFA will host and provide food at these events. Have you been to any IDFA events before?(Required)\n \n Yes\n \n \n No\n Consent I provide media consentI consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA. \nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos. CAPTCHA URL:https://idfa.org.au/event/coffee-club-in-sefton-park/ LOCATION:The Barun\, 219 Main N Rd\,\, Sefton Park\, SA\, 5083\, Australia CATEGORIES:Coffee Club ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/06/Sefton-Park-SA.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240724T173000 DTEND;TZID=Australia/Melbourne:20240724T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000070-1721842200-1721845800@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-24/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240717T190000 DTEND;TZID=Australia/Melbourne:20240717T200000 DTSTAMP:20240625T031546Z CREATED:20240625T031546Z LAST-MODIFIED:20240625T031546Z UID:10000083-1721242800-1721246400@idfa.org.au SUMMARY:Immunodeficiency Insights: Tips for Living Well – Young Adults DESCRIPTION:In this webinar we invite Dr Luke Droney an Immunologist who works with young people to share his insights on ways young people can navigate self-management and self-care for more balance\, and answer your questions about transitioning to adult care and practical ways to support your immune health. \nJanet Burke a counsellor for young people with chronic conditions will also share her insights and what she has learned from young people about staying well. We will also hear from Young Adult Member about their tips moving through study\, relationships and work while supporting their wellbeing living with an immunodeficiency. URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-young-adults/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/06/Webinar-ZoomWebsite-Banner-2024-3.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240717T173000 DTEND;TZID=Australia/Melbourne:20240717T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000069-1721237400-1721241000@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-17/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240714T103000 DTEND;TZID=Australia/Melbourne:20240714T123000 DTSTAMP:20240611T042658Z CREATED:20240611T041619Z LAST-MODIFIED:20240611T042658Z UID:10000080-1720953000-1720960200@idfa.org.au SUMMARY:Coffee Club in Wollongong DESCRIPTION:Host: Maree from IDFA\nDate and Time: Sunday 14 July\, 10:30am – 12:30pm\nLocation: Wollongong\, NSW\nVenue: TBC \nMeet other IDFA members at your local IDFA Coffee Club! \nCome along for a cuppa\, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed\, member-led spaces that allow our members to come together outside of IDFA-led events like the National IDFA Conference or our State Member Meetups. All IDFA members are welcome. \nRSVP below to receive a $5 voucher to help cover the cost of your drink. \nIs this event too far to travel for you? Consider hosting an IDFA Coffee Club of your own! Find out more here. \n\n \n \n Coffee Club RSVP\n \n \n Δ\n \n \n\n \n CompanyThis field is for validation purposes and should be left unchanged.Which IDFA Coffee Club are you attending?(Required)\n \n Canberra ACT\n \n \n Campbelltown NSW\n \n \n Wollongong NSW\n Your DetailsWhat is Your Name?(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Are you an IDFA member?(Required)\n \n Yes\n \n \n No\n Email(Required)Contact Number(Required)Address(Required)This field is hidden when viewing the formDietary Requirements(Required)\n \n No dietary requirements\n \n \n Vegetarian\n \n \n Vegan\n \n \n Pescatarian\n \n \n Gluten-free / Coeliac\n \n \n Dairy-free / Lactose-free\n \n \n Egg-free\n \n \n Pork-free\n \n \n Beef-free\n \n \n Halal\n \n \n Kosher\n \n \n Low FODMAP\n \n \n Diabetic-friendly / Low sugar\n \n \n Low sodium\n \n \n Mild/low spice\n \n \n \n Please complete\, as on occasion IDFA will host and provide food at these events. Dietary Requirements(Required)\n \n \n Vegan\n \n \n \n Pescatarian\n \n \n \n Gluten-free / Coeliac\n \n \n \n Dairy-free / Lactose-free\n \n \n \n Egg-free\n \n \n \n Pork-free\n \n \n \n Beef-free\n \n \n \n Halal\n \n \n \n Kosher\n \n \n \n Low FODMAP\n \n \n \n Diabetic-friendly / Low sugar\n \n \n \n Low sodium\n \n \n \n Mild/low spice\n \n \n \n None\n \n \n \n Other\n Please complete\, as on occasion IDFA will host and provide food at these events. Have you been to any IDFA events before?(Required)\n \n Yes\n \n \n No\n Consent I provide media consentI consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA. \nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos. CAPTCHA URL:https://idfa.org.au/event/coffee-club-in-wollongong/ CATEGORIES:Coffee Club ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/06/Wollongong-NSW-1.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240710T173000 DTEND;TZID=Australia/Melbourne:20240710T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000068-1720632600-1720636200@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-10/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240703T173000 DTEND;TZID=Australia/Melbourne:20240703T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000067-1720027800-1720031400@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-07-03/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240626T190000 DTEND;TZID=Australia/Melbourne:20240626T200000 DTSTAMP:20240522T221728Z CREATED:20240522T221728Z LAST-MODIFIED:20240522T221728Z UID:10000065-1719428400-1719432000@idfa.org.au SUMMARY:Immunodeficiency Insights: Tips for Living Well – Anxiety and Wellbeing DESCRIPTION:This webinar will focus on practical ways to navigate your energy levels\, understand your personal self-care areas\, communicate your self-care needs\, and manage day to day hidden anxiety. \nWe are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about staying well. Members Leigh Derby and (Member TBA) will also share their tips for managing overwhelm and self care for wellbeing. URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-anxiety-and-wellbeing/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/05/Webinar-ZoomWebsite-Banner-2024-2.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240626T173000 DTEND;TZID=Australia/Melbourne:20240626T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000042-1719423000-1719426600@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-26/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240621T120000 DTEND;TZID=Australia/Melbourne:20240621T140000 DTSTAMP:20240529T222900Z CREATED:20240513T213815Z LAST-MODIFIED:20240529T222900Z UID:10000062-1718971200-1718978400@idfa.org.au SUMMARY:Coffee Club in Caboolture DESCRIPTION:Member Host: Pearl\nDate and Time: Friday 21 June\, 12pm – 2pm\nLocation: Caboolture\, QLD\nVenue: Gather & Feast \nMeet other IDFA members at your local IDFA Coffee Club! \nCome along for a cuppa\, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed\, member-led spaces that allow our members to come together outside of IDFA-led events like the National IDFA Conference or our State Member Meetups. All IDFA members are welcome. \nRSVP below to receive a $5 voucher to help cover the cost of your drink. \nIs this event too far to travel for you? Consider hosting an IDFA Coffee Club of your own! Find out more here. \n\n \n \n Coffee Club RSVP\n \n \n Δ\n \n \n\n \n X/TwitterThis field is for validation purposes and should be left unchanged.Which IDFA Coffee Club are you attending?(Required)\n \n Canberra ACT\n \n \n Campbelltown NSW\n \n \n Wollongong NSW\n Your DetailsWhat is Your Name?(Required)\n \n \n \n First\n \n \n \n \n Last\n \n \n Are you an IDFA member?(Required)\n \n Yes\n \n \n No\n Email(Required)Contact Number(Required)Address(Required)This field is hidden when viewing the formDietary Requirements(Required)\n \n No dietary requirements\n \n \n Vegetarian\n \n \n Vegan\n \n \n Pescatarian\n \n \n Gluten-free / Coeliac\n \n \n Dairy-free / Lactose-free\n \n \n Egg-free\n \n \n Pork-free\n \n \n Beef-free\n \n \n Halal\n \n \n Kosher\n \n \n Low FODMAP\n \n \n Diabetic-friendly / Low sugar\n \n \n Low sodium\n \n \n Mild/low spice\n \n \n \n Please complete\, as on occasion IDFA will host and provide food at these events. Dietary Requirements(Required)\n \n \n Vegan\n \n \n \n Pescatarian\n \n \n \n Gluten-free / Coeliac\n \n \n \n Dairy-free / Lactose-free\n \n \n \n Egg-free\n \n \n \n Pork-free\n \n \n \n Beef-free\n \n \n \n Halal\n \n \n \n Kosher\n \n \n \n Low FODMAP\n \n \n \n Diabetic-friendly / Low sugar\n \n \n \n Low sodium\n \n \n \n Mild/low spice\n \n \n \n None\n \n \n \n Other\n Please complete\, as on occasion IDFA will host and provide food at these events. Have you been to any IDFA events before?(Required)\n \n Yes\n \n \n No\n Consent I provide media consentI consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA. \nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos. CAPTCHA URL:https://idfa.org.au/event/coffee-club-in-caboolture/ LOCATION:Gather & Feast\, 7 James St\,\, Caboolture\, QLD\, 4510\, Australia CATEGORIES:Coffee Club ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/05/Caboolture-QLD-1.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240619T173000 DTEND;TZID=Australia/Melbourne:20240619T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000041-1718818200-1718821800@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-19/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240612T173000 DTEND;TZID=Australia/Melbourne:20240612T183000 DTSTAMP:20250113T210536Z CREATED:20240611T014212Z LAST-MODIFIED:20250113T210536Z UID:10000040-1718213400-1718217000@idfa.org.au SUMMARY:IDFA Community Catchup - All Members DESCRIPTION:IDFA Community Catchups are informal\, zero-expectation\, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl. \nTo join this catchup\, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup\, please email Maree (maree@idfa.org.au) for the link to join. \nAre you interested in hosting your own Catchup at a time that suits you? Find out more here! URL:https://idfa.org.au/event/idfa-community-catchup-all-members-2/2024-06-12/ LOCATION:Online via Zoom\, Australia CATEGORIES:Online Group Chat ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/06/Pearl-Community-Catch-Up.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240608T110000 DTEND;TZID=Australia/Melbourne:20240608T140000 DTSTAMP:20240416T234259Z CREATED:20240416T030300Z LAST-MODIFIED:20240416T234259Z UID:10000059-1717844400-1717855200@idfa.org.au SUMMARY:WA Member Meet-Up DESCRIPTION:IDFA is set to host a casual member meet-up in WA in June this year ‘Conversations with IDFA’.\nThe event will be held in Crawley\, and includes members\, health professional members and experts. Although the event is being held in WA\, we welcome members from all across Australia to the event. \nThe intimate setting will enable casual conversation between guests and experts\, allowing for a space to connect and learn. \nExpert guests will include an immunologist and allied health professionals (Clinical Nurse Consultant and Psychologist). \nThis event provides a chance to discuss opportunities to build connections through IDFA Coffee Club or other in-person and online activities. \nMembers are welcome to bring a guest along with them. \nUpon RSVP members will be provided with menu options to pre-select their food and drinks for the day. \nPlease fill out the RSVP form to secure a spot! \n\n \n \n Member Meet-Up Registration\n \n \n Δ\n \n \n\n \n LinkedInThis field is for validation purposes and should be left unchanged.Which state Member Meet-up are you registering to attend?(Required)Please SelectWANSWACTNTQLDSATASVICYour DetailsConnection to IDFA(Required)Please SelectMemberFamily MemberOther (i.e. Stakeholder or Speaker)Not a MemberNot SureTitle(Required)Please SelectMsMrsMrMxDrOtherFirst Name(Required)Last Name(Required)Address(Required) \n \n \n \n Street Address\n \n \n City\n \n \n State / Province / Region\n \n \n Email(Required)\n \n Best Mobile Contact Number(Required)Dietary and/or Accessibility RequirementsQuestions/CommentsHow are you planning to travel to the event?(Required)Please SelectPrivate Transport (Car)Public Transport (Train/Bus)Ride Share (Taxi/Uber)OtherConsent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Guest/s DetailsWill you be bringing a guest?\n \n \n Yes\n \n \n \n No\n Guest 1 - Name(Required)Guest 1 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 1 - Child Age(Required)Guest 1 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Guest 1 - Dietary and/or Accessibility RequirementsWill you be bringing a second guest?\n \n \n Yes\n \n \n \n No\n Guest 2 - Name(Required)Guest 2 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 2 - Child Age(Required)Guest 2 - Dietary and/or Accessibility RequirementsGuest 2 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Will you be bringing a third guest?\n \n \n Yes\n \n \n \n No\n Guest 3 - Name(Required)Guest 3 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 3 - Child Age(Required)Guest 3 - Dietary and/or Accessibility RequirementsGuest 3 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.CAPTCHA URL:https://idfa.org.au/event/wa-member-meet-up/ LOCATION:Matilda Bay Restaurant\, 3 Hackett Dr.\, Crawley\, WA\, 6009\, Australia CATEGORIES:Member Meet-up ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/WA-June-2024.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240601T120000 DTEND;TZID=Australia/Melbourne:20240601T150000 DTSTAMP:20240502T025748Z CREATED:20240430T023108Z LAST-MODIFIED:20240502T025748Z UID:10000061-1717243200-1717254000@idfa.org.au SUMMARY:TAS Member Meet-Up DESCRIPTION:IDFA is set to host a casual member meet-up for our members in Tasmania called ‘Conversations with IDFA’ \nThe event will be held in Launceston on June 1st\, and includes members\, health professional members and experts. Although the event is being held in TAS\, we welcome members from all across Australia to the event. \nWe will welcome our guest immunologist Paul Cameron who will give guests an overview of his work and answer any questions you may have. The intimate setting will enable casual conversation between guests and experts\, allowing for a space to connect and learn from other members. \nThis event provides a chance to discuss opportunities to build lasting connections through IDFA Coffee Club or other in-person and online activities. \nMembers are welcome to bring a guest along with them. \nUpon RSVP members will be provided with menu options to pre-select their food and drinks for the day. \nPlease fill out the RSVP form to secure a spot! \nNote: Event times are listed in AEST. \n\n \n \n Member Meet-Up Registration\n \n \n Δ\n \n \n\n \n X/TwitterThis field is for validation purposes and should be left unchanged.Which state Member Meet-up are you registering to attend?(Required)Please SelectWANSWACTNTQLDSATASVICYour DetailsConnection to IDFA(Required)Please SelectMemberFamily MemberOther (i.e. Stakeholder or Speaker)Not a MemberNot SureTitle(Required)Please SelectMsMrsMrMxDrOtherFirst Name(Required)Last Name(Required)Address(Required) \n \n \n \n Street Address\n \n \n City\n \n \n State / Province / Region\n \n \n Email(Required)\n \n Best Mobile Contact Number(Required)Dietary and/or Accessibility RequirementsQuestions/CommentsHow are you planning to travel to the event?(Required)Please SelectPrivate Transport (Car)Public Transport (Train/Bus)Ride Share (Taxi/Uber)OtherConsent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Guest/s DetailsWill you be bringing a guest?\n \n \n Yes\n \n \n \n No\n Guest 1 - Name(Required)Guest 1 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 1 - Child Age(Required)Guest 1 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Guest 1 - Dietary and/or Accessibility RequirementsWill you be bringing a second guest?\n \n \n Yes\n \n \n \n No\n Guest 2 - Name(Required)Guest 2 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 2 - Child Age(Required)Guest 2 - Dietary and/or Accessibility RequirementsGuest 2 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.Will you be bringing a third guest?\n \n \n Yes\n \n \n \n No\n Guest 3 - Name(Required)Guest 3 - Child/Adult?(Required)\n \n \n Child\n \n \n \n Adult\n Guest 3 - Child Age(Required)Guest 3 - Dietary and/or Accessibility RequirementsGuest 3 Consent(Required)\n \n I provide media consent\n \n \n I do not provide media consent\n I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration\, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.\nIf you do not wish for images of you to be used by IDFA\, please remain out of group photos.CAPTCHA URL:https://idfa.org.au/event/tas-member-meet-up/ LOCATION:Alida Restaurant at Penny Royal\, 1 Bridge Rd\, Launceston\, TAS\, 7250\, Australia CATEGORIES:Member Meet-up ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/TAS-June-2024-4.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240530T190000 DTEND;TZID=Australia/Melbourne:20240530T200000 DTSTAMP:20240429T031913Z CREATED:20240429T031913Z LAST-MODIFIED:20240429T031913Z UID:10000060-1717095600-1717099200@idfa.org.au SUMMARY:Immunodeficiency Insights: Working with an Immunodeficiency DESCRIPTION:This webinar will focus on working with employers to manage living with an immunodeficiency\, staying well\, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members\, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace. URL:https://idfa.org.au/event/immunodeficiency-insights-working-with-an-immunodeficiency/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/Webinar-ZoomWebsite-Banner-2024-1.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240418T190000 DTEND;TZID=Australia/Melbourne:20240418T200000 DTSTAMP:20240320T222058Z CREATED:20240320T222058Z LAST-MODIFIED:20240320T222058Z UID:10000056-1713466800-1713470400@idfa.org.au SUMMARY:Immunodeficiency Insights: Ask IDFA DESCRIPTION:This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC)\, Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. \nYou can also post your questions to members of the Medical Advisory Committee to be answered during the webinar.\nMembers will also be asking common member questions to showcase the full range of topics you can Ask IDFA! Join us! \nIDFA Advisory Panel Speaker Geraldine Dunne \nExpert Presenters (Members of MAC): Dr Melanie Wong Dr Luke Droney \nIDFA Member Panel: Briana Corry Adam Friederich URL:https://idfa.org.au/event/immunodeficiency-insights-ask-idfa/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/03/Webinar-ZoomWebsite-Banner-2024-2.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240316T130000 DTEND;TZID=Australia/Melbourne:20240317T130000 DTSTAMP:20240201T222848Z CREATED:20240201T015635Z LAST-MODIFIED:20240201T222848Z UID:10000014-1710594000-1710680400@idfa.org.au SUMMARY:IDFA National Conference 2024 DESCRIPTION:Join us on Saturday 16 and Sunday 17 March 2024 for the IDFA Annual Conference in Sydney. \nThis is a fantastic opportunity for IDFA members to unite\, relish each other’s company\, and dive into engaging discussions led by IDFA\, health professionals\, and fellow members on exciting and relevant topics. \nEvent Timings \n\nSaturday 1-5pm – Conference\nSaturday 6pm – Conference Dinner\nSunday 9am-1pm – Conference\n\nConference Costs\nIDFA will cover the cost of Conference Registration\, accommodation\, meals and parking for all members. There is also a generous member subsidy available to ensure that our members are not out of pocket for any associated travel costs. \nTo RSVP please contact us at 📩 info@idfa.org.au or 1800 100 198. URL:https://idfa.org.au/event/idfa-national-conference-2024/ LOCATION:Rydges Sydney Airport\, 8 Arrival Ct\, Mascot\, NSW\, 2020\, Australia CATEGORIES:Member Meet-up ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/02/Website-Event-Banners-2024.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20240210T100000 DTEND;TZID=Australia/Melbourne:20240210T130000 DTSTAMP:20240115T214340Z CREATED:20240115T214340Z LAST-MODIFIED:20240115T214340Z UID:10000012-1707559200-1707570000@idfa.org.au SUMMARY:Brisbane Member Meeting DESCRIPTION:You Are Invited To… \nLeisurely Brunch On The Waterfront \nIDFA is delighted to invite you to a special gathering on the idyllic shores of the Brisbane River\, where the beauty of the outdoors meets the warmth of community. \n“Blossoming Together” \nBlossoming Together symbolises the growth\, resilience and vibrancy of our community. \nEvent Highlights \n\nMeet and Greet – Start your morning by mingling with fellow members who share your journey. Exchange stories\, support & laughter in the tranquil surroundings of the botanical gardens.\nSpeakers – Be empowered by valuable information provided by an IDFA representative\, healthcare professionals and our own members’ insights.\nDelectable Brunch – Enjoy a delicious brunch with tea/coffee and a choice of menu options. Savour flavours while enjoying garden views!\nNetworking – Forge new connections with members who understand the challenges and victories of living with immunodeficiency. Together\, we are stronger.\n\nRSVP via email info@idfa.org.au or phone 1800 100 198 URL:https://idfa.org.au/event/brisbane-member-meeting/ LOCATION:Mary Mae’s Bar & Kitchen\, Brisbane Powerhouse\, 119 Lamington St\, New Farm\, QLD\, 4005\, Australia CATEGORIES:Member Meet-up ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/01/Website-Banner-Events.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20231212T190000 DTEND;TZID=Australia/Melbourne:20231212T200000 DTSTAMP:20231114T003249Z CREATED:20231114T003249Z LAST-MODIFIED:20231114T003249Z UID:10000010-1702407600-1702411200@idfa.org.au SUMMARY:December PI Education Webinar: NDIS and Primary Immunodeficiencies DESCRIPTION:Many members facing significant challenges living with\, or caring for a person with\, a Primary Immunodeficiency\, have found the NDIS process very challenging. \nMandy Drain\, an NDIS Coordinator will outline; how the insurance program works\, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. \nKeynote Speakers \n\nMandy Drain – Taylor Made Outcomes URL:https://idfa.org.au/event/december-pi-education-webinar-ndis-and-primary-immunodeficiencies/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/11/Webinar-ZoomWebsite-Banner-2.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20231209T090000 DTEND;TZID=Australia/Melbourne:20231209T120000 DTSTAMP:20240115T213611Z CREATED:20231024T020329Z LAST-MODIFIED:20240115T213611Z UID:10000009-1702112400-1702123200@idfa.org.au SUMMARY:Canberra Member Meeting DESCRIPTION:You Are Invited To… \nLeisurely Brunch at the Botanical Gardens \nIDFA is delighted to invite you to a special gathering in the heart of nature\, where the beauty of the outdoors meets the warmth of community. \n“Blossoming Together” \nBlossoming Together symbolises the growth\, resilience and vibrancy of our community. \nEvent Highlights \n\nMeet and Greet – Start your morning by mingling with fellow members who share your journey. Exchange stories\, support & laughter in the tranquil surroundings of the botanical gardens.\nSpeakers – Be empowered by valuable information provided by an IDFA representative\, healthcare professionals and our own members’ insights.\nDelectable Brunch – Enjoy a delicious brunch with tea/coffee and a choice of menu options. Savour flavours while enjoying garden views!\nNetworking – Forge new connections with members who understand the challenges and victories of living with immunodeficiency. Together\, we are stronger.\n\nRSVP via email info@idfa.org.au or phone 1800 100 198 URL:https://idfa.org.au/event/canberra-member-meeting/ LOCATION:Crosbie Morrison Building Australian National Botanic Gardens\, Tourist Drive 2\, Clunies Ross St\,\, Acton\, ACT\, 2601\, Australia CATEGORIES:Member Meet-up ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/10/Website-Banner-Events-1.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20231202T100000 DTEND;TZID=Australia/Melbourne:20231202T130000 DTSTAMP:20231024T015956Z CREATED:20231024T015441Z LAST-MODIFIED:20231024T015956Z UID:10000008-1701511200-1701522000@idfa.org.au SUMMARY:Melbourne Member Meeting DESCRIPTION:You Are Invited To… \nLeisurely Brunch at the Botanical Gardens \nIDFA is delighted to invite you to a special gathering in the heart of nature\, where the beauty of the outdoors meets the warmth of community. \n“Blossoming Together” \nBlossoming Together symbolises the growth\, resilience and vibrancy of our community. \nEvent Highlights \n\nMeet and Greet – Start your morning by mingling with fellow members who share your journey. Exchange stories\, support & laughter in the tranquil surroundings of the botanical gardens.\nSpeakers – Be empowered by valuable information provided by an IDFA representative\, healthcare professionals and our own members’ insights.\nDelectable Brunch – Enjoy a delicious brunch with tea/coffee and a choice of menu options. Savour flavours while enjoying garden views!\nNetworking – Forge new connections with members who understand the challenges and victories of living with immunodeficiency. Together\, we are stronger.\n\nRSVP via email info@idfa.org.au or phone 1800 100 198 URL:https://idfa.org.au/event/6956/ LOCATION:The Terrace Café Melbourne Botanic Gardens By The Lake\, Corner Alexandra Avenue &\, Anderson St\,\, South Yarra\, VIC\, 3141\, Australia ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/10/Website-Banner-Events.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20231130T190000 DTEND;TZID=Australia/Melbourne:20231130T200000 DTSTAMP:20231012T041147Z CREATED:20231012T040424Z LAST-MODIFIED:20231012T041147Z UID:10000007-1701370800-1701374400@idfa.org.au SUMMARY:November PI Education Webinar: Men's Health and Primary Immunodeficiencies DESCRIPTION:There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. \nThis webinar will focus on practical ways male members living with a PI or caring for a child with a PI\, can maintain a healthy lifestyle and mental wellbeing. \nKeynote Speakers \n\nDr Karuna Keat – Immunologist\nMitch Durbridge – Clinical Psychologist\n\nIDFA Member Insights \n\nAdam Friederich\nRichard Price\nDale Dominey-Howes URL:https://idfa.org.au/event/november-pi-education-webinar-mens-health-primary-immunodeficiencies/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2023/10/Webinar-ZoomWebsite-Banner.jpg ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20231026T190000 DTEND;TZID=Australia/Melbourne:20231026T200000 DTSTAMP:20230919T021751Z CREATED:20230919T021751Z LAST-MODIFIED:20230919T021751Z UID:10000006-1698346800-1698350400@idfa.org.au SUMMARY:October PI Education Webinar: Plasma Update and Donation Advocacy DESCRIPTION:To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg\, the plasma journey from donor to recipient managed by Lifeblood\, and tips to share your story to promote plasma donation. \nKeynote Speakers \n\nJo Cameron National Blood Authority – Director Commercial Blood Products\nSally Deveson Lifeblood ACT – Community Relations Officer\n\nIDFA Member Insights \n\nHayley Teasdale – Lifeblood Volunteer and IDFA member URL:https://idfa.org.au/event/october-pi-education-webinar-plasma-update-and-donation-advocacy/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/09/Webinar-ZoomWebsite-Banner-1.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20230926T190000 DTEND;TZID=Australia/Melbourne:20230926T200000 DTSTAMP:20230904T222655Z CREATED:20230904T222655Z LAST-MODIFIED:20230904T222655Z UID:10000005-1695754800-1695758400@idfa.org.au SUMMARY:September PI Education Webinar: Newborn Screening for SCID – A Brave New World DESCRIPTION:After many years of campaigning\, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country\, and most states and territories are already underway. This webinar provides important updates for both patient members and health professional working with parents of babies with an abnormal SCID NBS test result. \nKeynote Presenter: Dr Kahn Preece\, NSW Paediatric Immunologist \nMember Insights: Louise Grant URL:https://idfa.org.au/event/september-pi-education-webinar-newborn-screening-for-scid-a-brave-new-world/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20230829T190000 DTEND;TZID=Australia/Melbourne:20230829T200000 DTSTAMP:20230801T061527Z CREATED:20230713T040345Z LAST-MODIFIED:20230801T061527Z UID:10000004-1693335600-1693339200@idfa.org.au SUMMARY:August PI Education Webinar: Young Adult Members Transitioning into Adult Care DESCRIPTION:Young Adult Members Transitioning into Adult Care \n\nAre you a young adult member moving into the adult health care system?\nAre you a carer member wanting to know how to support a young adult making this transition?\n\n\nWe know that often the move into the adult care healthcare system can be particularly stressful and can cause a great deal of anxiety. You may need to start accessing different clinicians possibly in different locations and develop new relationships with less parental involvement. You may also also encounter clinicians who are not very experienced working with young people. Then there’s the expectation to be much more responsible for your treatment plan\, ask questions and self-advocate if you feel your needs are not being met. \nIn this webinar we are inviting Immunologist Dr Alisa Kane and young adult member Zoe Parry to cover some of the key changes you can expect moving into the adult healthcare system\, some common issues young people may face\, areas for self advocacy\, and tips and strategies for a smoother transition. URL:https://idfa.org.au/event/august-pi-education-webinar-yams-transitioning-into-adult-care/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20230727T190000 DTEND;TZID=Australia/Melbourne:20230727T200000 DTSTAMP:20230626T005339Z CREATED:20230613T024145Z LAST-MODIFIED:20230626T005339Z UID:10000003-1690484400-1690488000@idfa.org.au SUMMARY:PI Education Webinar - GP Awareness of Immunodeficiencies DESCRIPTION:Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test\, or referral\, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. \nUnfortunately\, GPs can often mistake the warning signs of an immunodeficiency\, leading to complications from ongoing infection\, avoidable hospitalization and deteriorating mental well-being. \nOur next webinar is for both GPs and community members to support earlier detection in our community and promote quality of life: \n\nWhat signs can GPs look for?\nWhat can GPs do to support earlier diagnosis?\nWhat can members do to work with their GP to self-advocate and support awareness?\n\nPlease feel free to send any questions or tips to share as a patient working with your GP to IDFA at info@idfa.org.au in advance of the Webinar. Please let us know if you’re interested in briefly presenting your journey with our members. URL:https://idfa.org.au/event/pi-education-webinar-gp-awareness-of-immunodeficiencies/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/06/Webinars-and-Event_Banners-6.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20230627T190000 DTEND;TZID=Australia/Melbourne:20230627T200000 DTSTAMP:20230605T133945Z CREATED:20230525T041521Z LAST-MODIFIED:20230605T133945Z UID:10000002-1687892400-1687896000@idfa.org.au SUMMARY:PI Education Webinar - Travel Smart with Immunodeficiency DESCRIPTION:We know that for many members travelling can be an immense challenge. However\, some have been able to enjoy travelling safely with the right planning and support. \nOur next PI Education webinar will include members sharing their travel stories and tips\, and key need-to-know information from a travel industry advocate for people with disabilities. \nPlease let us know any questions and areas of interest to cover in the webinar such as: arranging medications\, immunoglobulin\, and SCIg consumables\, managing medical equipment\, planning an itinerary to manage fatigue\, managing pain or mobility issues\, and making suitable accommodation and travel arrangements. \nIf you would like to share any travel tips with members to stay well and get the most out of their trip – Please reach out! We would love to add your tips to our webinar or\, if interested\, you can be a presenter in the webinar! \nPlease feel free to send any questions to IDFA at info@idfa.org.au in advance of the Webinar so that we can ensure that we are able to provide you with a response. URL:https://idfa.org.au/event/pi-education-webinar-travelsmart-with-ids/ LOCATION:Online via Zoom\, Australia CATEGORIES:Webinar ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Melbourne:20230504T190000 DTEND;TZID=Australia/Melbourne:20230504T200000 DTSTAMP:20230504T042739Z CREATED:20230413T053207Z LAST-MODIFIED:20230504T042739Z UID:10000001-1683226800-1683230400@idfa.org.au SUMMARY:Use Your Voice - Self Advocacy DESCRIPTION:To celebrate World PI Week\, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. \nGuest speakers will share their experiences with self-advocacy and discuss how the toolkit can help. The co-creator of the toolkit will also be on hand to provide insights into the creation and development of this invaluable resource. \nAttendees will have the opportunity to hear from members of the community who have either used self-advocacy techniques to improve their health outcomes and quality of life or feel that these tools will be valuable for them and others going forward. By learning from these experiences\, participants will gain a deeper understanding of how self-advocacy can positively impact their lives and those of their loved ones. \nThe Self-Advocacy Toolkit is a comprehensive resource that provides individuals with a way to take control of their healthcare journey. \nGuest Speakers include: \n\nChristine Jeffery – Vice President IPOPI\, IDFA National Patient Advisory Panel Member and CIRCA Board Member\nLouise Healy – Education and Advocacy Manager at Rare Voices Australia\nGeraldine Dunne – Clinical Nurse Consultant Immunology & Infectious Disease at Sydney Children’s Hospital Network\nIDFA Members URL:https://idfa.org.au/event/use-your-voice-self-advocacy/ LOCATION:Online via Zoom\, Australia ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/04/Webinars-and-Event_Banners.png ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au END:VEVENT END:VCALENDAR