Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Teresa’s Story

Teresa’s Story

For years, Teresa knew something wasn’t right with her health, but struggled to find answers. After years of unexplained symptoms, a life-threatening illness and a long road through hospital, she was finally diagnosed with Common Variable Immunodeficiency (CVID).

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Lily’s Story

Lily’s Story

For most of her life, Lily thought getting sick was just something she had to deal with. After years of recurring infections and long recoveries, a diagnosis of Common Variable Immunodeficiency (CVID) at 28 finally helped explain what she had been experiencing.

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Kimmy’s Story

Kimmy’s Story

Living with an immunodeficiency means making thoughtful decisions every day, but Kimmy doesn’t let it stop her from enjoying life.

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Judy’s Story

Judy’s Story

After years of unexplained illness and recurring infections, Judy was finally diagnosed with CVID at 50. Today, weekly SCIg treatment is part of her routine, giving her greater independence while she continues to focus on family, connection and the things she loves.

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Jonno’s Story

Jonno’s Story

To make weekly infusions easier, Jonno created a dedicated treatment space at home, keeping all of his equipment organised and, in the early days, relying on a simple step-by-step checklist until the routine became second nature.

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Holly’s Story

Holly’s Story

Through resilience, self-advocacy and a determination to embrace every opportunity, Holly continues to build a life that’s full of purpose, creativity and connection—proving that while immunodeficiency is part of her story, it is far from the whole story.

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