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X-WR-CALDESC:Events for IDFA
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DTSTART;TZID=Australia/Melbourne:20240522T190000
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DTSTAMP:20240514T011729Z
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LAST-MODIFIED:20240514T011729Z
UID:10000063-1716404400-1716408000@idfa.org.au
SUMMARY:Gene Therapy and SCID
DESCRIPTION:Gene Therapy and SCID\nInvitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study.\nThe SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. \nThis month\, we are inviting all SCID families to attend this meeting as we will be joined by – Dr Lorna Mc Leman\, Research Fellow\, Murdoch Children’s Research Institute\, Melbourne. Lorna will be outlining a current consumer study about Gene Therapies. We were fortunate enough to hear some of these insights at the recent National conference we held in March\, and are looking forward to the next updates. The meeting will also provide an opportunity for IDFA members to be involved in the study as either participants or as Consumer Advisors so please come along to hear about this unique opportunity to be involved in research. \n\nMeeting Agenda \n\nWelcome and Apologies\nPrevious Meeting Actions\n\nCampaign timeline\nList of families and campaign supporters\nChildren’s Book – Carer Survey\n\n\nGuest Speaker – Dr Lorna Mc Leman\nState/Territories Campaign Update\nSCID Connect Support Group\n\nUpdate\nMeeting Facilitator\n\n\nAchievement of National SCID NBS\n\nIDFA media and other activities\n\n\nOther Business\n\nCampaign Update – Access to SCIg Treatment\n\n\nNext Meeting
URL:https://idfa.org.au/event/gene-therapy-and-scid/
LOCATION:Online via Zoom\, Australia
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DTSTART;TZID=Australia/Melbourne:20240530T190000
DTEND;TZID=Australia/Melbourne:20240530T200000
DTSTAMP:20240429T031913Z
CREATED:20240429T031913Z
LAST-MODIFIED:20240429T031913Z
UID:10000060-1717095600-1717099200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Working with an Immunodeficiency
DESCRIPTION:This webinar will focus on working with employers to manage living with an immunodeficiency\, staying well\, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members\, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
URL:https://idfa.org.au/event/immunodeficiency-insights-working-with-an-immunodeficiency/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/Webinar-ZoomWebsite-Banner-2024-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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