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X-WR-CALDESC:Events for IDFA
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DTSTART;TZID=Australia/Melbourne:20230829T190000
DTEND;TZID=Australia/Melbourne:20230829T200000
DTSTAMP:20230801T061527Z
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UID:10000004-1693335600-1693339200@idfa.org.au
SUMMARY:August PI Education Webinar: Young Adult Members Transitioning into Adult Care
DESCRIPTION:Young Adult Members Transitioning into Adult Care \n\nAre you a young adult member moving into the adult health care system?\nAre you a carer member wanting to know how to support a young adult making this transition?\n\n\nWe know that often the move into the adult care healthcare system can be particularly stressful and can cause a great deal of anxiety. You may need to start accessing different clinicians possibly in different locations and develop new relationships with less parental involvement. You may also also encounter clinicians who are not very experienced working with young people. Then there’s the expectation to be much more responsible for your treatment plan\, ask questions and self-advocate if you feel your needs are not being met. \nIn this webinar we are inviting Immunologist Dr Alisa Kane and young adult member Zoe Parry to cover some of the key changes you can expect moving into the adult healthcare system\, some common issues young people may face\, areas for self advocacy\, and tips and strategies for a smoother transition.
URL:https://idfa.org.au/event/august-pi-education-webinar-yams-transitioning-into-adult-care/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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DTSTART;TZID=Australia/Melbourne:20230727T190000
DTEND;TZID=Australia/Melbourne:20230727T200000
DTSTAMP:20230626T005339Z
CREATED:20230613T024145Z
LAST-MODIFIED:20230626T005339Z
UID:10000003-1690484400-1690488000@idfa.org.au
SUMMARY:PI Education Webinar - GP Awareness of Immunodeficiencies
DESCRIPTION:Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test\, or referral\, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. \nUnfortunately\, GPs can often mistake the warning signs of an immunodeficiency\, leading to complications from ongoing infection\, avoidable hospitalization and deteriorating mental well-being. \nOur next webinar is for both GPs and community members to support earlier detection in our community and promote quality of life: \n\nWhat signs can GPs look for?\nWhat can GPs do to support earlier diagnosis?\nWhat can members do to work with their GP to self-advocate and support awareness?\n\nPlease feel free to send any questions or tips to share as a patient working with your GP to IDFA at info@idfa.org.au in advance of the Webinar. Please let us know if you’re interested in briefly presenting your journey with our members.
URL:https://idfa.org.au/event/pi-education-webinar-gp-awareness-of-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
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ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
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DTSTART;TZID=Australia/Melbourne:20230627T190000
DTEND;TZID=Australia/Melbourne:20230627T200000
DTSTAMP:20230605T133945Z
CREATED:20230525T041521Z
LAST-MODIFIED:20230605T133945Z
UID:10000002-1687892400-1687896000@idfa.org.au
SUMMARY:PI Education Webinar - Travel Smart with Immunodeficiency
DESCRIPTION:We know that for many members travelling can be an immense challenge. However\, some have been able to enjoy travelling safely with the right planning and support. \nOur next PI Education webinar will include members sharing their travel stories and tips\, and key need-to-know information from a travel industry advocate for people with disabilities. \nPlease let us know any questions and areas of interest to cover in the webinar such as: arranging medications\, immunoglobulin\, and SCIg consumables\, managing medical equipment\, planning an itinerary to manage fatigue\, managing pain or mobility issues\, and making suitable accommodation and travel arrangements. \nIf you would like to share any travel tips with members to stay well and get the most out of their trip – Please reach out! We would love to add your tips to our webinar or\, if interested\, you can be a presenter in the webinar! \nPlease feel free to send any questions to IDFA at info@idfa.org.au in advance of the Webinar so that we can ensure that we are able to provide you with a response.
URL:https://idfa.org.au/event/pi-education-webinar-travelsmart-with-ids/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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DTSTART;TZID=Australia/Melbourne:20230504T190000
DTEND;TZID=Australia/Melbourne:20230504T200000
DTSTAMP:20230504T042739Z
CREATED:20230413T053207Z
LAST-MODIFIED:20230504T042739Z
UID:10000001-1683226800-1683230400@idfa.org.au
SUMMARY:Use Your Voice - Self Advocacy
DESCRIPTION:To celebrate World PI Week\, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. \nGuest speakers will share their experiences with self-advocacy and discuss how the toolkit can help. The co-creator of the toolkit will also be on hand to provide insights into the creation and development of this invaluable resource. \nAttendees will have the opportunity to hear from members of the community who have either used self-advocacy techniques to improve their health outcomes and quality of life or feel that these tools will be valuable for them and others going forward. By learning from these experiences\, participants will gain a deeper understanding of how self-advocacy can positively impact their lives and those of their loved ones. \nThe Self-Advocacy Toolkit is a comprehensive resource that provides individuals with a way to take control of their healthcare journey. \nGuest Speakers include: \n\nChristine Jeffery – Vice President IPOPI\, IDFA National Patient Advisory Panel Member and CIRCA Board Member\nLouise Healy – Education and Advocacy Manager at Rare Voices Australia\nGeraldine Dunne – Clinical Nurse Consultant Immunology & Infectious Disease at Sydney Children’s Hospital Network\nIDFA Members
URL:https://idfa.org.au/event/use-your-voice-self-advocacy/
LOCATION:Online via Zoom\, Australia
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ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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