To celebrate World PI Week, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. Guest speakers will share their experiences with self-advocacy and discuss how the […]
We know that for many members travelling can be an immense challenge. However, some have been able to enjoy travelling safely with the right planning and support. Our next PI Education webinar will include members sharing their travel stories and tips, and key need-to-know information from a travel industry advocate for people with disabilities. Please […]
Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test, or referral, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. Unfortunately, GPs can often mistake the […]
