This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]
Gene Therapy and SCID Invitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study. The SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. This month, we are inviting all SCID […]
This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
IDFA is set to host a casual member meet-up for our members in Tasmania called ‘Conversations with IDFA’ The event will be held in Launceston on June 1st, and includes members, health professional members and experts. Although the event is being held in TAS, we welcome members from all across Australia to the event. We […]
IDFA is set to host a casual member meet-up in WA in June this year ‘Conversations with IDFA’. The event will be held in Crawley, and includes members, health professional members and experts. Although the event is being held in WA, we welcome members from all across Australia to the event. The intimate setting will […]
Member Host: Pearl Date and Time: Friday 21 June, 12pm – 2pm Location: Caboolture, QLD Venue: Gather & Feast Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs […]
This webinar will focus on practical ways to navigate your energy levels, understand your personal self-care areas, communicate your self-care needs, and manage day to day hidden anxiety. We are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about […]
Host: Maree from IDFA Date and Time: Sunday 14 July, 10:30am – 12:30pm Location: Wollongong, NSW Venue: TBC Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed, member-led spaces that allow our […]
Want to know more about ways to mix it up and add more self-care but don’t know what that really looks like for you? Want to explore what it really means to live your best life and stay well? Then this webinar is for you!
Member Host: Brendon Date and Time: Sunday, 28 July 10.00am - 12.00pm Location: Sefton Park, SA Venue: The Barun Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs […]
The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences, struggles, tips & tricks with other YAMs.
Host: Hamish Date and Time: Saturday, 3 August, 1:30pm – 3:30pm Location: Marrickville, NSW Venue: Side Story Café (313 Marrickville Rd, Marrickville NSW 2204) Meet other IDFA members at your local IDFA Coffee Club! This IDFA Coffee Club is specifically for Child Members aged 5 – 12 and their Carers. Side Story Café was chosen for its outdoor, […]
