Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with […]
Join us on Saturday 16 and Sunday 17 March 2024 for the IDFA Annual Conference in Sydney. This is a fantastic opportunity for IDFA members to unite, relish each other's company, and dive into engaging discussions led by IDFA, health professionals, and fellow members on exciting and relevant topics. Event Timings Saturday 1-5pm – Conference […]
Many members experience challenges managing their gut health. This may include managing gut disorders, food intolerances, microflora imbalances with medication use, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian […]
This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]
Gene Therapy and SCID Invitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study. The SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. This month, we are inviting all SCID […]
This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
IDFA is set to host a casual member meet-up for our members in Tasmania called ‘Conversations with IDFA’ The event will be held in Launceston on June 1st, and includes members, health professional members and experts. Although the event is being held in TAS, we welcome members from all across Australia to the event. We […]
IDFA is set to host a casual member meet-up in WA in June this year ‘Conversations with IDFA’. The event will be held in Crawley, and includes members, health professional members and experts. Although the event is being held in WA, we welcome members from all across Australia to the event. The intimate setting will […]
Member Host: Pearl Date and Time: Friday 21 June, 12pm – 2pm Location: Caboolture, QLD Venue: Gather & Feast Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs […]
This webinar will focus on practical ways to navigate your energy levels, understand your personal self-care areas, communicate your self-care needs, and manage day to day hidden anxiety. We are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about […]
Host: Maree from IDFA Date and Time: Sunday 14 July, 10:30am – 12:30pm Location: Wollongong, NSW Venue: TBC Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed, member-led spaces that allow our […]
Want to know more about ways to mix it up and add more self-care but don’t know what that really looks like for you? Want to explore what it really means to live your best life and stay well? Then this webinar is for you!
