Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; how the insurance program works, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. […]
Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. The […]
You Are Invited To... Leisurely Brunch On The Waterfront IDFA is delighted to invite you to a special gathering on the idyllic shores of the Brisbane River, where the beauty of the outdoors meets the warmth of community. "Blossoming Together” Blossoming Together symbolises the growth, resilience and vibrancy of our community. Event Highlights Meet and Greet […]
Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with […]
Join us on Saturday 16 and Sunday 17 March 2024 for the IDFA Annual Conference in Sydney. This is a fantastic opportunity for IDFA members to unite, relish each other's company, and dive into engaging discussions led by IDFA, health professionals, and fellow members on exciting and relevant topics. Event Timings Saturday 1-5pm – Conference […]
Many members experience challenges managing their gut health. This may include managing gut disorders, food intolerances, microflora imbalances with medication use, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian […]
This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC), Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. You can also post your questions to members of the Medical Advisory Committee to be answered during […]
Gene Therapy and SCID Invitation to join the SCID Advocacy Group Meeting with special guest speaker Dr Lorna Mc Leman providing an update on a current Gene Therapy study. The SCID advocacy group has been meeting regularly since 2021 to move forward SCID advocacy across all states and territories. This month, we are inviting all SCID […]
This webinar will focus on working with employers to manage living with an immunodeficiency, staying well, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
IDFA is set to host a casual member meet-up for our members in Tasmania called ‘Conversations with IDFA’ The event will be held in Launceston on June 1st, and includes members, health professional members and experts. Although the event is being held in TAS, we welcome members from all across Australia to the event. We […]
IDFA is set to host a casual member meet-up in WA in June this year ‘Conversations with IDFA’. The event will be held in Crawley, and includes members, health professional members and experts. Although the event is being held in WA, we welcome members from all across Australia to the event. The intimate setting will […]
Member Host: Pearl Date and Time: Friday 21 June, 12pm – 2pm Location: Caboolture, QLD Venue: Gather & Feast Meet other IDFA members at your local IDFA Coffee Club! Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs […]
