BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//IDFA - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:IDFA
X-ORIGINAL-URL:https://idfa.org.au
X-WR-CALDESC:Events for IDFA
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Australia/Melbourne
BEGIN:STANDARD
TZOFFSETFROM:+1100
TZOFFSETTO:+1000
TZNAME:AEST
DTSTART:20220402T160000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+1000
TZOFFSETTO:+1100
TZNAME:AEDT
DTSTART:20221001T160000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+1100
TZOFFSETTO:+1000
TZNAME:AEST
DTSTART:20230401T160000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+1000
TZOFFSETTO:+1100
TZNAME:AEDT
DTSTART:20230930T160000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+1100
TZOFFSETTO:+1000
TZNAME:AEST
DTSTART:20240406T160000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+1000
TZOFFSETTO:+1100
TZNAME:AEDT
DTSTART:20241005T160000
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230504T190000
DTEND;TZID=Australia/Melbourne:20230504T200000
DTSTAMP:20230504T042739Z
CREATED:20230413T053207Z
LAST-MODIFIED:20230504T042739Z
UID:10000001-1683226800-1683230400@idfa.org.au
SUMMARY:Use Your Voice - Self Advocacy
DESCRIPTION:To celebrate World PI Week\, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. \nGuest speakers will share their experiences with self-advocacy and discuss how the toolkit can help. The co-creator of the toolkit will also be on hand to provide insights into the creation and development of this invaluable resource. \nAttendees will have the opportunity to hear from members of the community who have either used self-advocacy techniques to improve their health outcomes and quality of life or feel that these tools will be valuable for them and others going forward. By learning from these experiences\, participants will gain a deeper understanding of how self-advocacy can positively impact their lives and those of their loved ones. \nThe Self-Advocacy Toolkit is a comprehensive resource that provides individuals with a way to take control of their healthcare journey. \nGuest Speakers include: \n\nChristine Jeffery – Vice President IPOPI\, IDFA National Patient Advisory Panel Member and CIRCA Board Member\nLouise Healy – Education and Advocacy Manager at Rare Voices Australia\nGeraldine Dunne – Clinical Nurse Consultant Immunology & Infectious Disease at Sydney Children’s Hospital Network\nIDFA Members
URL:https://idfa.org.au/event/use-your-voice-self-advocacy/
LOCATION:Online via Zoom\, Australia
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/04/Webinars-and-Event_Banners.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
END:VCALENDAR