IDFA

YAM Conversations: Socialising Safely
2024-08-08 19:00 - 20:00 (Australia/Melbourne) | Online via Zoom, Australia
The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences, struggles, tips & tricks with other YAMs. Sessions happen every Thursday night in August, 7pm – 8pm AEST.
This session will invite conversations on building and maintaining social relationships, managing fatigue in social settings and optimising communications with friends and family.
The full list of topics for our YAM Conversation series are:

Battling Burnout – August 1
Socialising Safely – August 8
Healthy Habits – August 15
Mindfulness Matters – August 22
Medical Management – August 29

Coffee Club in West Perth
2024-08-10 10:30 - 12:30 | Zamia Cafe, 50 May Dr,, West Perth, WA, 6005, Australia
Member Host: Richard
Date and Time: Saturday, 10 August 10.30am – 12.30pm
Location: West Perth, WA
Venue: Zamia Cafe (Kings Park)
Meet other IDFA members at your local IDFA Coffee Club!
Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed, member-led spaces that allow our members to come together outside of IDFA-led events like the National IDFA Conference or our State Member Meetups. All IDFA members are welcome.
RSVP below to receive a $5 voucher to help cover the cost of your drink.
Is this event too far to travel for you? Consider hosting an IDFA Coffee Club of your own! Find out more here.

Coffee Club RSVP

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NameThis field is for validation purposes and should be left unchanged.Which IDFA Coffee Club are you attending?(Required)

Canberra ACT

Campbelltown NSW

Wollongong NSW
Your DetailsWhat is Your Name?(Required)

First

Last

Are you an IDFA member?(Required)

Yes

No
Email(Required)Contact Number(Required)Address(Required)This field is hidden when viewing the formDietary Requirements(Required)

No dietary requirements

Vegetarian

Vegan

Pescatarian

Gluten-free / Coeliac

Dairy-free / Lactose-free

Egg-free

Pork-free

Beef-free

Halal

Kosher

Low FODMAP

Diabetic-friendly / Low sugar

Low sodium

Mild/low spice

Please complete, as on occasion IDFA will host and provide food at these events. Dietary Requirements(Required)

Vegan

Pescatarian

Gluten-free / Coeliac

Dairy-free / Lactose-free

Egg-free

Pork-free

Beef-free

Halal

Kosher

Low FODMAP

Diabetic-friendly / Low sugar

Low sodium

Mild/low spice

None

Other
Please complete, as on occasion IDFA will host and provide food at these events. Have you been to any IDFA events before?(Required)

Yes

No
Consent I provide media consentI consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
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IDFA Community Catchup - All Members
2024-08-14 17:30 - 18:30, 2024-08-21 17:30 - 18:30, 2024-08-28 17:30 - 18:30, 2024-09-04 17:30 - 18:30, 2024-09-11 17:30 - 18:30, 2024-09-18 17:30 - 18:30, 2024-09-25 17:30 - 18:30, 2024-10-02 17:30 - 18:30 and 5 more dates | Online via Zoom, Australia
IDFA Community Catchups are informal, zero-expectation, member-led spaces where our members can come and connect with other humans that know what they’re going through. This Community Catchup is for all IDFA members and is hosted by IDFA member Pearl.
To join this catchup, you will need to be a member of our IDFA Connect support group on Facebook as that is where the link to join is posted. If you do not have an account on Facebook and would like to join this Community Catchup, please email Maree (maree@idfa.org.au) for the link to join.
Are you interested in hosting your own Catchup at a time that suits you? Find out more here!

YAM Conversations: Healthy Habits
2024-08-15 19:00 - 20:00 | Online via Zoom, Australia
The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences, struggles, tips & tricks with other YAMs. Sessions happen every Thursday night in August, 7pm – 8pm AEST.
This session will invite conversations on exploring healthy habits, such as movement, nutrition, sleep and managing pain.
The full list of topics for our YAM Conversation series are:

Battling Burnout – August 1
Socialising Safely – August 8
Healthy Habits – August 15
Mindfulness Matters – August 22
Medical Management – August 29

YAM Conversations: Mindfulness Matters
2024-08-22 19:00 - 20:00 | Online via Zoom, Australia
The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences, struggles, tips & tricks with other YAMs. Sessions happen every Thursday night in August, 7pm – 8pm AEST.
This session will invite conversations on mindfulness, strategies to help promote mental health and wellbeing and developing a mental health action plan.
The full list of topics for our YAM Conversation series are:

Battling Burnout – August 1
Socialising Safely – August 8
Healthy Habits – August 15
Mindfulness Matters – August 22
Medical Management – August 29

YAM Conversations: Medical Management
2024-08-29 19:00 - 20:00 | Online via Zoom, Australia
The YAM Conversation Series are a range of conversations on various topics important to our Young Adult Members (YAMs). IDFA is inviting members aged between 18-28 years to come along and share their experiences, struggles, tips & tricks with other YAMs. Sessions happen every Thursday night in August, 7pm – 8pm AEST.
This session will invite conversations on exploring strategies to stay on top of treatment, establishing routines and transitioning to the adult healthcare system.
The full list of topics for our YAM Conversation series are:

Battling Burnout – August 1
Socialising Safely – August 8
Healthy Habits – August 15
Mindfulness Matters – August 22
Medical Management – August 29

SA Member Meet-Up
2024-09-07 09:00 - 12:00 | Rydges South Park Adelaide, 1 South Tce, Adelaide, SA, 5000, Australia
IDFA is set to host a casual member meet-up for our members in South Australia called ‘Conversations with IDFA’
The event will be held in Adelaide on September 7, and includes members, health professional members and experts. Although the event is being held in SA, we welcome members from all across Australia to the event.
The intimate setting will enable casual conversation between guests and experts, allowing for a space to connect and learn from other members whilst enjoying a delicious morning tea.
This event provides a chance to discuss opportunities to build lasting connections through IDFA Coffee Club or other in-person and online activities.
Members are welcome to bring a guest along with them.
Please fill out the RSVP form to secure a spot!
RSVP’s Close: 31 August 2024
Note: Event times are listed in AEST.

Member Meet-Up Registration

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InstagramThis field is for validation purposes and should be left unchanged.Which state Member Meet-up are you registering to attend?(Required)Please SelectWANSWACTNTQLDSATASVICYour DetailsConnection to IDFA(Required)Please SelectMemberFamily MemberOther (i.e. Stakeholder or Speaker)Not a MemberNot SureTitle(Required)Please SelectMsMrsMrMxDrOtherFirst Name(Required)Last Name(Required)Address(Required)

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Email(Required)

Best Mobile Contact Number(Required)Dietary and/or Accessibility RequirementsQuestions/CommentsHow are you planning to travel to the event?(Required)Please SelectPrivate Transport (Car)Public Transport (Train/Bus)Ride Share (Taxi/Uber)OtherConsent(Required)

I provide media consent

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I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Guest/s DetailsWill you be bringing a guest?

Yes

No
Guest 1 - Name(Required)Guest 1 - Child/Adult?(Required)

Child

Adult
Guest 1 - Child Age(Required)Guest 1 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Guest 1 - Dietary and/or Accessibility RequirementsWill you be bringing a second guest?

Yes

No
Guest 2 - Name(Required)Guest 2 - Child/Adult?(Required)

Child

Adult
Guest 2 - Child Age(Required)Guest 2 - Dietary and/or Accessibility RequirementsGuest 2 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Will you be bringing a third guest?

Yes

No
Guest 3 - Name(Required)Guest 3 - Child/Adult?(Required)

Child

Adult
Guest 3 - Child Age(Required)Guest 3 - Dietary and/or Accessibility RequirementsGuest 3 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
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Coffee Club in Camden
2024-09-17 11:00 - 13:00 | The House of Art Camden, 39 John St, Camden, NSW, 2570, Australia
Member Host: Sue
Date and Time: Tuesday 17 September, 11am – 1pm
Location: Camden, NSW
Venue: The House of Art Camden (39 John St, Camden NSW 2570)
Meet other IDFA members at your local IDFA Coffee Club!
Come along for a cuppa, a chat and to connect with other people who understand the day-to-day experiences of life with an immunodeficiency. IDFA Coffee Clubs are relaxed, member-led spaces that allow our members to come together outside of IDFA-led events like the National IDFA Conference or our State Member Meetups. All IDFA members are welcome.
RSVP below to receive a $5 voucher to help cover the cost of your drink.
Is this event too far to travel for you? Consider hosting an IDFA Coffee Club of your own! Find out more here.

Coffee Club RSVP

Δ

EmailThis field is for validation purposes and should be left unchanged.Which IDFA Coffee Club are you attending?(Required)

Canberra ACT

Campbelltown NSW

Wollongong NSW
Your DetailsWhat is Your Name?(Required)

First

Last

Are you an IDFA member?(Required)

Yes

No
Email(Required)Contact Number(Required)Address(Required)This field is hidden when viewing the formDietary Requirements(Required)

No dietary requirements

Vegetarian

Vegan

Pescatarian

Gluten-free / Coeliac

Dairy-free / Lactose-free

Egg-free

Pork-free

Beef-free

Halal

Kosher

Low FODMAP

Diabetic-friendly / Low sugar

Low sodium

Mild/low spice

Please complete, as on occasion IDFA will host and provide food at these events. Dietary Requirements(Required)

Vegan

Pescatarian

Gluten-free / Coeliac

Dairy-free / Lactose-free

Egg-free

Pork-free

Beef-free

Halal

Kosher

Low FODMAP

Diabetic-friendly / Low sugar

Low sodium

Mild/low spice

None

Other
Please complete, as on occasion IDFA will host and provide food at these events. Have you been to any IDFA events before?(Required)

Yes

No
Consent I provide media consentI consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos. CAPTCHA
Submit

The Journey Together for Universal SCID NBS
2024-09-19 19:00 - 20:00 | Online via Zoom, Australia
We are inviting everyone to join us for the NBS SCID Campaign Commemorative event, to highlight the achievement of SCID NBS throughout Australia and to recognise the key role of advocates.
We will also reflect on the power of organisational collaboration within the Australian rare disease sector and stakeholders to achieve a pivotal result for early diagnosis and treatment for Australians.
We will hear from key IDFA member advocates and look back on the IDFA campaign journey that made a real difference to the lives of Australian babies and their families moving forward.
Medical – Advocate Speakers:
Dr Melanie Wong – Paediatric Immunologist
Geraldine Dunne – CNS Immunology
Stakeholder – Advocate Speakers
AusPIPs – Emily Edwards (Recording)
Rare Voices Australia – Louise Healy (Recording)
Member – Advocate Speakers:
Jenny Tyrrell
Javeria Ahmad
Louise Grant
Sarah McArthur

Wollongong Plasma Party
2024-10-01 10:00 - 12:00 | Lifeblood Wollongong, 1/45-53 Kembla St, Wollongong, NSW, 2500, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Wollongong donor centre on Tuesday, 1 October. This event kicks off the ‘IDFA Plasma Parties on Tour’ campaign for 2024, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in Wollongong or stay tuned for a Plasma Party near you. Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

Sydney, Town Hall Plasma Party
2024-10-09 10:00 - 12:00 | Lifeblood Town Hall, 483 George St,, Sydney, NSW, 2000, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Town Hall donor centre in Sydney on Wednesday, 9 October. This event is part of our IPAW campaign, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in Sydney or stay tuned for a Plasma Party near you.
Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

Mt Waverly Plasma Party
2024-10-09 10:00 - 12:00 | Lifeblood Mt Waverly, Pinewood Centre, 43 Centreway, Blackburn Rd,, Mount Waverley, VIC, 3149, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Mt Waverly donor centre in Victoria on Wednesday, 9 October from 10am-12pm (local time). This event is part of our IPAW campaign, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in Mt Waverly or stay tuned for a Plasma Party near you.
Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

Perth Plasma Party
2024-10-09 13:00 - 15:00 | Lifeblood Perth, 1/140 William St,, Perth, WA, 6000, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Perth donor centre in Western Australia on Wednesday, 9 October from 10am-12pm (local time). This event is part of our IPAW campaign, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in Perth or stay tuned for a Plasma Party near you.
Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

Newcastle Plasma Party
2024-10-10 12:30 - 14:30 | Lifeblood Newcastle, Unit 1/165 Lambton Rd,, Broadmeadow, NSW, 2292, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Newcastle donor centre in NSW on Thursday 10 October from 12.30pm – 2.30pm (local time). This event is part of our IPAW campaign, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in Newcastle or stay tuned for a Plasma Party near you.
Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

Civic, ACT Plasma Party
2024-10-11 09:00 - 11:00 | Lifeblood Civic, ACT, 4 Mort St,, Canberra, ACT, 2601, Australia
In celebration of International Plasma Awareness Week, IDFA and Lifeblood Australia are hosting a ‘Plasma Party’ at the Civic donor centre in the ACT on Friday, 11 October from 9am-11am (local time). This event is part of our IPAW campaign, and we warmly invite members and the community to join us.
Donors will have the unique opportunity to meet recipients and hear about the life-changing impact their generosity has made. With approximately 130 plasma donations needed each year to treat just one person with primary immunodeficiency, the demand for plasma is crucial.
Come together with us in the ACT or stay tuned for a Plasma Party near you.
Interested in hosting an event at your local donor centre? [Click here – volunteer agreement].

IDFA's Mini Film Festival
2024-10-17 19:00 - 20:30 | Online via Zoom, Australia
National Carers Week 2024

IDFA’s Mini Film Festival
IDFA is organizing a night at the movies from the comfort of your own home!
In celebration of National Carers Week, we are inviting you to join us for a mini film festival. We’d like to invite our Carers, the people they care for, and all of our members to come grab some popcorn, put your feet up and watch three beautiful short films that showcase different aspects of the caring journey.
This film night will showcase a selection of films from Bus Stop Films, who make film with, for and about people from diverse backgrounds and abilities. We will also be showing a segment from the recent documentary Compromised: Life Without Immunity.

7:00pm – Event start
7:10pm – BusStop Film 1: Stairs (12 minutes)
7:22pm – Bustop Film 2: What Was It Like? (15 minutes)
7:40pm – 5 mins break
7:45pm – Story from Compromised: Life Without Immunity (25mins)
8:10pm – 5 mins break
8:15pm – BusStop Film 3: Groundhog Night (15 mins)
8:30pm – Event close

Register here!

Immunodeficiency Insights: Treatment Update – SCIg
2024-10-23 19:00 - 20:00 | Online via Zoom, Australia
This webinar will focus on providing an update for members about SCIg access nationally and supporting you to make the most of SCIg as a treatment option.
We are inviting Shay Logue from the National Blood Authority (NBA) to provide an overview of the current patient funding arrangements for SCIg and the process to access SCIg. Carolyn Dews IDFA CEO will also share an overview of the IDFA and AusPIPs national campaign to improve SCIg patient access and support. We will also invite Rachael Dunn a SCIg nurse and CNS in Immunology to answer your practical questions about using SCIg, managing side-effects and making the most out of this treatment.

VIC Member Meet-Up
2024-11-09 09:00 - 12:00 | Hotel Grand Chancellor Melbourne, 131 Lonsdale St,, Melbourne, VIC, 3000, Australia
IDFA is excited to host a casual member meet-up, ‘Inspiring Connections,’ for our members in Victoria!
Join us in Melbourne on Saturday, 9 November, for a relaxed gathering with members, healthcare professionals, and experts. Although the event is in Victoria, we warmly welcome members from all over Australia to attend.
In this intimate setting, guests will have the opportunity to engage in casual conversations with experts and fellow members, fostering connections while enjoying a light morning tea.
This event provides a chance to discuss opportunities to build lasting connections through IDFA Coffee Club or other in-person and online activities.
Members are welcome to bring a guest along with them.
Please fill out the RSVP form to secure a spot!
RSVP’s Close: 28 October 2024 (midday)
Note: Event times are listed in AEDT.

Member Meet-Up Registration

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URLThis field is for validation purposes and should be left unchanged.Which state Member Meet-up are you registering to attend?(Required)Please SelectWANSWACTNTQLDSATASVICYour DetailsConnection to IDFA(Required)Please SelectMemberFamily MemberOther (i.e. Stakeholder or Speaker)Not a MemberNot SureTitle(Required)Please SelectMsMrsMrMxDrOtherFirst Name(Required)Last Name(Required)Address(Required)

Street Address

City

State / Province / Region

Email(Required)

Best Mobile Contact Number(Required)Dietary and/or Accessibility RequirementsQuestions/CommentsHow are you planning to travel to the event?(Required)Please SelectPrivate Transport (Car)Public Transport (Train/Bus)Ride Share (Taxi/Uber)OtherConsent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Guest/s DetailsWill you be bringing a guest?

Yes

No
Guest 1 - Name(Required)Guest 1 - Child/Adult?(Required)

Child

Adult
Guest 1 - Child Age(Required)Guest 1 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Guest 1 - Dietary and/or Accessibility RequirementsWill you be bringing a second guest?

Yes

No
Guest 2 - Name(Required)Guest 2 - Child/Adult?(Required)

Child

Adult
Guest 2 - Child Age(Required)Guest 2 - Dietary and/or Accessibility RequirementsGuest 2 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.Will you be bringing a third guest?

Yes

No
Guest 3 - Name(Required)Guest 3 - Child/Adult?(Required)

Child

Adult
Guest 3 - Child Age(Required)Guest 3 - Dietary and/or Accessibility RequirementsGuest 3 Consent(Required)

I provide media consent

I do not provide media consent
I consent to IDFA using and publishing photographic images (the Material) of the person(s) RSVPing to this event for informational and promotional purposes without remuneration, and release the IDFA from any infringement of any personal or property rights arising from use of the Material by IDFA.
If you do not wish for images of you to be used by IDFA, please remain out of group photos.CAPTCHA
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