We know that for many members travelling can be an immense challenge. However, some have been able to enjoy travelling safely with the right planning and support. Our next PI Education webinar will include members sharing their travel stories and tips, and key need-to-know information from a travel industry advocate for people with disabilities. Please […]
Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test, or referral, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. Unfortunately, GPs can often mistake the […]
Young Adult Members Transitioning into Adult Care Are you a young adult member moving into the adult health care system? Are you a carer member wanting to know how to support a young adult making this transition? We know that often the move into the adult care healthcare system can be particularly stressful and can […]
After many years of campaigning, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country, and most states and territories are already […]
To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg, the plasma journey from donor to recipient […]
There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. This webinar will focus on practical ways male members living with a […]
You Are Invited To... Leisurely Brunch at the Botanical Gardens IDFA is delighted to invite you to a special gathering in the heart of nature, where the beauty of the […]
You Are Invited To... Leisurely Brunch at the Botanical Gardens IDFA is delighted to invite you to a special gathering in the heart of nature, where the beauty of the […]
Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; […]
Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster […]
You Are Invited To... Leisurely Brunch On The Waterfront IDFA is delighted to invite you to a special gathering on the idyllic shores of the Brisbane River, where the beauty of […]
Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. This webinar will bring together Rare Voices Australia and key researchers […]