To celebrate World PI Week, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases. Guest speakers will share their experiences with self-advocacy and discuss how the […]
We know that for many members travelling can be an immense challenge. However, some have been able to enjoy travelling safely with the right planning and support. Our next PI Education webinar will include members sharing their travel stories and tips, and key need-to-know information from a travel industry advocate for people with disabilities. Please […]
Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test, or referral, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. Unfortunately, GPs can often mistake the […]
Young Adult Members Transitioning into Adult Care Are you a young adult member moving into the adult health care system? Are you a carer member wanting to know how to support a young adult making this transition? We know that often the move into the adult care healthcare system can be particularly stressful and can […]
After many years of campaigning, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country, and most states and territories are already underway. This webinar provides important updates for both patient members and health professional working with parents of babies with an abnormal SCID NBS test result. […]
To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg, the plasma journey from donor to recipient managed by Lifeblood, and tips to share your story to promote plasma donation. Keynote Speakers Jo Cameron National Blood Authority - Director Commercial Blood Products […]
There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. This webinar will focus on practical ways male members living with a PI or caring for a child with a PI, can maintain a healthy lifestyle and mental wellbeing. Keynote Speakers Dr Karuna Keat – Immunologist Mitch […]
You Are Invited To... Leisurely Brunch at the Botanical Gardens IDFA is delighted to invite you to a special gathering in the heart of nature, where the beauty of the outdoors meets the warmth of community. "Blossoming Together” Blossoming Together symbolises the growth, resilience and vibrancy of our community. Event Highlights Meet and Greet - […]
You Are Invited To... Leisurely Brunch at the Botanical Gardens IDFA is delighted to invite you to a special gathering in the heart of nature, where the beauty of the outdoors meets the warmth of community. "Blossoming Together” Blossoming Together symbolises the growth, resilience and vibrancy of our community. Event Highlights Meet and Greet - […]
Many members facing significant challenges living with, or caring for a person with, a Primary Immunodeficiency, have found the NDIS process very challenging. Mandy Drain, an NDIS Coordinator will outline; how the insurance program works, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. […]
Learn more about the COVID-19 booster vaccination program, variants, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. The […]
