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TZID:Australia/Melbourne
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260715T190000
DTEND;TZID=Australia/Melbourne:20260715T200000
DTSTAMP:20260514T014256Z
CREATED:20260514T014256Z
LAST-MODIFIED:20260514T014256Z
UID:10001621-1784142000-1784145600@idfa.org.au
SUMMARY:Immunodeficiency Insights: The Gut–Immune Connection
DESCRIPTION:The Gut–Immune Connection \nGut Health and Immunodeficiency: Explore the role of the microbiome\, nutrition and digestive health in managing immunodeficiencies.
URL:https://idfa.org.au/event/immunodeficiency-insights-the-gut-immune-connection/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2026/05/The-Gut–Immune-Connection.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260611T190000
DTEND;TZID=Australia/Melbourne:20260611T200000
DTSTAMP:20260514T014618Z
CREATED:20260514T013739Z
LAST-MODIFIED:20260514T014618Z
UID:10001620-1781204400-1781208000@idfa.org.au
SUMMARY:Immunodeficiency Insights: Winter Safety for Immunodeficiency
DESCRIPTION:Winter Safety for Immunodeficiency \nAs winter approaches\, many people living with immunodeficiencies are thinking about how to stay well while continuing to work\, study\, travel\, socialise\, and care for their families. \nJoin us for an engaging and practical webinar exploring real-world strategies to help reduce infection risk and support your wellbeing during the colder months. From navigating busy public spaces to managing illness within the home\, this session will focus on the everyday decisions that can make a big difference. \nWhat You’ll Learn:\n✅ What actually works when it comes to winter infection prevention — including masks\, vaccines\, antivirals\, hygiene\, and layered protection strategies\n✅ Navigating schools\, workplaces\, travel\, and social settings more confidently\n✅Knowing when to rest and recover versus when it’s okay to push through\n✅Reducing household transmission between family members\, children\, carers\, and loved ones\n✅ Creating a personalised winter wellness plan that works for your lifestyle and health needs\n✅Making practical\, informed day-to-day decisions throughout winter \nAttendees will leave with the knowledge and confidence to have informed conversations with their healthcare team and make decisions that best meet their needs.
URL:https://idfa.org.au/event/immunodeficiency-insights-winter-safety-for-immunodeficiency/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2026/05/Winter-Safety-for-Immunodeficiency-1.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20260429T190000
DTEND;TZID=Australia/Melbourne:20260429T200000
DTSTAMP:20260324T031609Z
CREATED:20260324T031458Z
LAST-MODIFIED:20260324T031609Z
UID:10001617-1777489200-1777492800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Think PI: Living Well with Immunodeficiency: Challenges\, Support and Daily Strategies
DESCRIPTION:In recognition of World Primary Immunodeficiency Week\, this webinar brings together an immunologist and an IDFA Member for a meaningful conversation about life with primary immunodeficiency. \nThrough shared insights and personal experience\, they will explore the challenges of diagnosis\, navigating care\, and the realities of daily life with PI – while offering practical advice\, hope and support for the broader community.
URL:https://idfa.org.au/event/immunodeficiency-insights-think-pi-living-well-with-immunodeficiency/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2026/03/Think-PI-Living-Well-with-Immunodeficiency-Challenges-Support-and-Daily-Strategies-.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20251204T190000
DTEND;TZID=Australia/Melbourne:20251204T200000
DTSTAMP:20250925T001347Z
CREATED:20250925T001310Z
LAST-MODIFIED:20250925T001347Z
UID:10001605-1764874800-1764878400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Understanding Genetics: Carrier Screening and Targeted Support
DESCRIPTION:Genetics can play an important role in understanding immune deficiencies\, guiding family planning\, and accessing the right support. This webinar will explore what carrier screening is\, how it works\, and what support is available for individuals and families navigating genetic information. \nJoin us as experts share their insights into genetic testing and advocacy pathways\, alongside an IDFA member who will provide a lived-experience perspective. Together\, they’ll unpack the practical\, emotional\, and medical aspects of genetics in immunodeficiencies.
URL:https://idfa.org.au/event/understanding-genetics-carrier-screening-and-targeted-support/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2025/09/Medical.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20251008T190000
DTEND;TZID=Australia/Melbourne:20251008T200000
DTSTAMP:20250911T035742Z
CREATED:20250911T035742Z
LAST-MODIFIED:20250911T035742Z
UID:10001604-1759950000-1759953600@idfa.org.au
SUMMARY:Immunodeficiency Insights - SCIg Access and Advocacy: The National Picture
DESCRIPTION:IDFA\, in partnership with AusPIPS is hosting an educational webinar focused on understanding Immunoglobulin (Ig) therapy and exploring available treatment options. This session is designed to help patients\, carers\, and members of the community build a clearer understanding of what Ig therapy is\, how it works\, and the different therapeutic options currently available. Our aim is to empower attendees with knowledge so they can make informed decisions about their treatment and engage confidently in discussions with their healthcare team.
URL:https://idfa.org.au/event/immunodeficiency-insights-scig-access-and-advocacy-the-national-picture/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2025/09/SCIg-Access-Advocacy-The-National-Picture.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250910T190000
DTEND;TZID=Australia/Melbourne:20250910T200000
DTSTAMP:20250820T220611Z
CREATED:20250820T220611Z
LAST-MODIFIED:20250820T220611Z
UID:10001603-1757530800-1757534400@idfa.org.au
SUMMARY:Immunodeficiency Insights - Mindfulness\, Mental Health and Self-Compassion
DESCRIPTION:Join us for a practical and engaging webinar designed to help you bring mindfulness and self-compassion into your everyday life. Positive Psychology Coach Jodie Cooper will kick things off with easy-to-apply strategies and insights into how these practices support mental health\, emotional balance\, and focus. Following this\, Elizabeth Granger will guide you through an experiential mindfulness practice\, helping you embody self-compassion and leave with a simple micro-practice you can use right away. Whether you’re new to mindfulness or looking to deepen your practice\, this session offers both understanding and hands-on experience to boost your wellbeing.
URL:https://idfa.org.au/event/immunodeficiency-insights-mindfulness-mental-health-and-self-compassion/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2025/08/Mindfulness-Mental-Health-and-Self-Compassion-.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250716T190000
DTEND;TZID=Australia/Melbourne:20250716T200000
DTSTAMP:20250611T214726Z
CREATED:20250611T214726Z
LAST-MODIFIED:20250611T214726Z
UID:10001601-1752692400-1752696000@idfa.org.au
SUMMARY:Immunodeficiency Insights - Breathe Easy: Making Indoor Air Safer for Everyone
DESCRIPTION:Join us for an informative session designed to help IDFA members explore how indoor air quality impacts our health—particularly for those with immunodeficiencies. We’ll also introduce the Safer Air Project\, an initiative focused on creating healthier\, more inclusive environments in everyday spaces such as workplaces\, clinics\, and meeting rooms.
URL:https://idfa.org.au/event/immunodeficiency-insights-breathe-easy-making-indoor-air-safer-for-everyone/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2025/06/Breathe-Easy-Making-Indoor-Air-Safer-for-Everyone.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250430T190000
DTEND;TZID=Australia/Melbourne:20250430T200000
DTSTAMP:20250323T223723Z
CREATED:20250318T090119Z
LAST-MODIFIED:20250323T223723Z
UID:10001566-1746039600-1746043200@idfa.org.au
SUMMARY:Immunodeficiency Insights – The Impact of Comorbidities on Immunodeficiency
DESCRIPTION:This webinar\, which is co-hosted with AusPIPS Inc.\, will share the impact that comorbidities have on immunodeficiency by engaging a number of professional speakers. There will also be a member perspective on comorbidities and how to manage these. The webinar will engage the entire IDFA community from members to health professionals and the general community by providing easy to understand information about the underlying factors that may co-exist with immunodeficiency. \nThis will align with this year’s theme for World PI Week is See the Unseen – Unite to Uncover the stories behind immunodeficiencies.
URL:https://idfa.org.au/event/immunodeficiency-insights-the-impact-of-comorbidities-on-immunodeficiency/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2025/03/Medical-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250227T190000
DTEND;TZID=Australia/Melbourne:20250227T200000
DTSTAMP:20241219T023811Z
CREATED:20241219T023811Z
LAST-MODIFIED:20241219T023811Z
UID:10001037-1740682800-1740686400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Re-Imagining Immunodeficiencies
DESCRIPTION:This Rare Disease Day we will invite leading medical researchers to share their visions for early diagnosis and novel treatments for immunodeficiencies. We will hear about future directions for care and potential impacts for people living with immunodeficiency. Young members will showcase how far we have come during their lifetime and share their vision and hopes for the future. Join Us!
URL:https://idfa.org.au/event/immunodeficiency-insights-re-imagining-immunodeficiencies-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/12/Lifestyle.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241216T190000
DTEND;TZID=Australia/Melbourne:20241216T200000
DTSTAMP:20241107T043421Z
CREATED:20241107T043421Z
LAST-MODIFIED:20241107T043421Z
UID:10000375-1734375600-1734379200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Accessing Supports - NDIS and Non-NDIS
DESCRIPTION:This webinar will focus on an update about the Independent NDIS review\, recommendations and what this can mean for members. We will also provide an outline of current non NDIS Foundational Supports and how these can be accessed if needed\, as well as the timeline for the NDIS review. We will also share practical tips to keep in mind to make the most of your application. \nRegister here. 
URL:https://idfa.org.au/event/immunodeficiency-insights-accessing-supports-ndis-and-non-ndis/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/11/Webinar-ZoomWebsite-Banner-2024-7.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241120T190000
DTEND;TZID=Australia/Melbourne:20241120T200000
DTSTAMP:20241009T235548Z
CREATED:20241009T235548Z
LAST-MODIFIED:20241009T235548Z
UID:10000370-1732129200-1732132800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Tips for Living Well - Self Care
DESCRIPTION:Let’s celebrate the recent National Carers Week with a focus on self-care and spotlight on IDFA Carers. \nThis webinar will highlight: \n\nAspects of carer wellbeing and an outline on how to navigate the Carer Gateway to find a variety of services and supports specific to carers.\nA practical approach to self-care to help with you next steps to wellbeing wherever you are at in your caring journey.\nA member carer sharing their tips along their carer journey and their insights to staying well.
URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-self-care/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/10/Webinar-ZoomWebsite-Banner-2024-5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20241023T190000
DTEND;TZID=Australia/Melbourne:20241023T200000
DTSTAMP:20240905T001906Z
CREATED:20240827T095252Z
LAST-MODIFIED:20240905T001906Z
UID:10000362-1729710000-1729713600@idfa.org.au
SUMMARY:Immunodeficiency Insights: Treatment Update – SCIg
DESCRIPTION:This webinar will focus on providing an update for members about SCIg access nationally and supporting you to make the most of SCIg as a treatment option. \nWe are inviting Shay Logue from the National Blood Authority (NBA) to provide an overview of the current patient funding arrangements for SCIg and the process to access SCIg. Carolyn Dews IDFA CEO will also share an overview of the IDFA and AusPIPs national campaign to improve SCIg patient access and support. We will also invite Rachael Dunn a SCIg nurse and CNS in Immunology to answer your practical questions about using SCIg\, managing side-effects and making the most out of this treatment.
URL:https://idfa.org.au/event/immunodeficiency-insights-treatment-update-scig/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/08/Webinar-ZoomWebsite-Banner-2024-3.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240807T190000
DTEND;TZID=Australia/Melbourne:20240807T200000
DTSTAMP:20240708T215136Z
CREATED:20240708T214647Z
LAST-MODIFIED:20240708T215136Z
UID:10000345-1723057200-1723060800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update – Patient Perspectives on Immunodeficiencies
DESCRIPTION:This webinar will focus on raising awareness among health and community care professionals about the lived experience and self-management and wellbeing support needs of people living with a primary and secondary immunodeficiency to improve their quality of life. \nWe are inviting a panel of members Javeria\, Kimmy\, Briana\, Tanielle to respond to questions from General Practitioner Dr Sara Yusef and Clinical Nurse Consultant (TBA). \nWe will also be showcasing some useful resources for health professionals to find out more about primary and secondary immunodeficiencies.
URL:https://idfa.org.au/event/immunodeficiency-insights-update-patient-perspectives-on-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/07/Webinar-ZoomWebsite-Banner-2024-4.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240717T190000
DTEND;TZID=Australia/Melbourne:20240717T200000
DTSTAMP:20240625T031546Z
CREATED:20240625T031546Z
LAST-MODIFIED:20240625T031546Z
UID:10000083-1721242800-1721246400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Tips for Living Well – Young Adults
DESCRIPTION:In this webinar we invite Dr Luke Droney an Immunologist who works with young people to share his insights on ways young people can navigate self-management and self-care for more balance\, and answer your questions about transitioning to adult care and practical ways to support your immune health. \nJanet Burke a counsellor for young people with chronic conditions will also share her insights and what she has learned from young people about staying well. We will also hear from Young Adult Member about their tips moving through study\, relationships and work while supporting their wellbeing living with an immunodeficiency.
URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-young-adults/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/06/Webinar-ZoomWebsite-Banner-2024-3.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240626T190000
DTEND;TZID=Australia/Melbourne:20240626T200000
DTSTAMP:20240522T221728Z
CREATED:20240522T221728Z
LAST-MODIFIED:20240522T221728Z
UID:10000065-1719428400-1719432000@idfa.org.au
SUMMARY:Immunodeficiency Insights: Tips for Living Well – Anxiety and Wellbeing
DESCRIPTION:This webinar will focus on practical ways to navigate your energy levels\, understand your personal self-care areas\, communicate your self-care needs\, and manage day to day hidden anxiety. \nWe are inviting Sharon Bard a counsellor from GlassHouse Reflections to share her insights supporting people with complex and chronic health conditions and answer your questions about staying well. Members Leigh Derby and (Member TBA) will also share their tips for managing overwhelm and self care for wellbeing.
URL:https://idfa.org.au/event/immunodeficiency-insights-tips-for-living-well-anxiety-and-wellbeing/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/05/Webinar-ZoomWebsite-Banner-2024-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240530T190000
DTEND;TZID=Australia/Melbourne:20240530T200000
DTSTAMP:20240429T031913Z
CREATED:20240429T031913Z
LAST-MODIFIED:20240429T031913Z
UID:10000060-1717095600-1717099200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Working with an Immunodeficiency
DESCRIPTION:This webinar will focus on working with employers to manage living with an immunodeficiency\, staying well\, self-advocacy areas for work life balance and pathways for employee support. Below are the expert speakers and members\, to share their experiences and tips in supporting both workers and employers to better manage disabilities in the workplace.
URL:https://idfa.org.au/event/immunodeficiency-insights-working-with-an-immunodeficiency/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/04/Webinar-ZoomWebsite-Banner-2024-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240418T190000
DTEND;TZID=Australia/Melbourne:20240418T200000
DTSTAMP:20240320T222058Z
CREATED:20240320T222058Z
LAST-MODIFIED:20240320T222058Z
UID:10000056-1713466800-1713470400@idfa.org.au
SUMMARY:Immunodeficiency Insights: Ask IDFA
DESCRIPTION:This webinar will focus on learning more about the IDFA Medical Advisory Committee (MAC)\, Health Professionals Advisory Panel (HPAP) and National Patient Advisory Panel (NPAP) and how you can post your questions to inform upcoming appointments and self-management. \nYou can also post your questions to members of the Medical Advisory Committee to be answered during the webinar.\nMembers will also be asking common member questions to showcase the full range of topics you can Ask IDFA! Join us! \nIDFA Advisory Panel Speaker Geraldine Dunne \nExpert Presenters (Members of MAC): Dr Melanie Wong Dr Luke Droney \nIDFA Member Panel: Briana Corry Adam Friederich
URL:https://idfa.org.au/event/immunodeficiency-insights-ask-idfa/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/03/Webinar-ZoomWebsite-Banner-2024-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240321T190000
DTEND;TZID=Australia/Melbourne:20240321T200000
DTSTAMP:20240226T225358Z
CREATED:20240226T225323Z
LAST-MODIFIED:20240226T225358Z
UID:10000016-1711047600-1711051200@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update: Gut Health and Immunodeficiencies
DESCRIPTION:Many members experience challenges managing their gut health. This may include managing gut disorders\, food intolerances\, microflora imbalances with medication use\, and managing nutrition. This webinar will provide an update on approaches to managing gut health conditions and ways to support a healthy gut microbiome and immune health through nutrition. Professor Jason Tye-Din and Dietitian Chiara Miglioretto are invited to share their insights and answer your gut health questions. \nExpert Presenters:\nAssoc. Professor Dr Jason Tye-Din – Gastroenterologist/Researcher\nChiara Miglioretto (Gut Friendly Dietitians) – Dietitian \nIDFA Member Insights:\nKelly Lambert – Carer of Child with PI and Dietitian
URL:https://idfa.org.au/event/immunodeficiency-insights-update-gut-health-and-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240229T190000
DTEND;TZID=Australia/Melbourne:20240229T200000
DTSTAMP:20240129T214647Z
CREATED:20240129T214647Z
LAST-MODIFIED:20240129T214647Z
UID:10000013-1709233200-1709236800@idfa.org.au
SUMMARY:Immunodeficiency Insights: Voices of IDFA Resource Launch
DESCRIPTION:Rare Disease Day aims to maintain a strong focus on Rare Diseases like Primary Immunodeficiencies in research and advocacy. \nThis webinar will bring together Rare Voices Australia and key researchers from the Rare Disease Sector to highlight the continued need for a focus on Rare Diseases through collaboration and innovation to benefit communities living with immunodeficiencies. \nThis webinar will also have a special focus on the role of member stories \nKeynote Speakers\nCarolyn Dews – IDFA – CEO\nEstela Gimenez – IDFA – Programs Coordinator \nIDFA Member Insights:\nLouise Grant\nKylie Downie
URL:https://idfa.org.au/event/immunodeficiency-insights-voices-of-idfa-resource-launch/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2024/01/Webinar-ZoomWebsite-Banner-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240201T190000
DTEND;TZID=Australia/Melbourne:20240201T200000
DTSTAMP:20240115T213531Z
CREATED:20231214T041438Z
LAST-MODIFIED:20240115T213531Z
UID:10000011-1706814000-1706817600@idfa.org.au
SUMMARY:Immunodeficiency Insights: Update: COVID-19 Variants and Vaccinations
DESCRIPTION:Learn more about the COVID-19 booster vaccination program\, variants\, and the latest research on COVID-19 among the Australian population and available treatments. With the roll out of the COVID-19 booster program we know that many members have been learning to navigate the changing landscape of variants and navigating living with an immunodeficiency post pandemic. \nThe webinar will feature health professionals and member insights. \nKeynote Presenter:\nDr Katrina Randall \nIDFA Member Insights:\nBarbara O’Neill \nExpert Speaker:\nDr Emily Edwards
URL:https://idfa.org.au/event/immunodeficiency-insights-update-covid-19-variants-and-vaccinations/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/12/Webinar-ZoomWebsite-Banner-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231212T190000
DTEND;TZID=Australia/Melbourne:20231212T200000
DTSTAMP:20231114T003249Z
CREATED:20231114T003249Z
LAST-MODIFIED:20231114T003249Z
UID:10000010-1702407600-1702411200@idfa.org.au
SUMMARY:December PI Education Webinar: NDIS and Primary Immunodeficiencies
DESCRIPTION:Many members facing significant challenges living with\, or caring for a person with\, a Primary Immunodeficiency\, have found the NDIS process very challenging. \nMandy Drain\, an NDIS Coordinator will outline; how the insurance program works\, key application steps and areas of impairment when living with an immunodeficiency to inform your application and sources of evidence. \nKeynote Speakers \n\nMandy Drain – Taylor Made Outcomes
URL:https://idfa.org.au/event/december-pi-education-webinar-ndis-and-primary-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/11/Webinar-ZoomWebsite-Banner-2.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231130T190000
DTEND;TZID=Australia/Melbourne:20231130T200000
DTSTAMP:20231012T041147Z
CREATED:20231012T040424Z
LAST-MODIFIED:20231012T041147Z
UID:10000007-1701370800-1701374400@idfa.org.au
SUMMARY:November PI Education Webinar: Men's Health and Primary Immunodeficiencies
DESCRIPTION:There is little information available about the impacts of Primary Immunodeficiencies (PIs) on men’s physical and mental health. \nThis webinar will focus on practical ways male members living with a PI or caring for a child with a PI\, can maintain a healthy lifestyle and mental wellbeing. \nKeynote Speakers \n\nDr Karuna Keat – Immunologist\nMitch Durbridge – Clinical Psychologist\n\nIDFA Member Insights \n\nAdam Friederich\nRichard Price\nDale Dominey-Howes
URL:https://idfa.org.au/event/november-pi-education-webinar-mens-health-primary-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2023/10/Webinar-ZoomWebsite-Banner.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20231026T190000
DTEND;TZID=Australia/Melbourne:20231026T200000
DTSTAMP:20230919T021751Z
CREATED:20230919T021751Z
LAST-MODIFIED:20230919T021751Z
UID:10000006-1698346800-1698350400@idfa.org.au
SUMMARY:October PI Education Webinar: Plasma Update and Donation Advocacy
DESCRIPTION:To highlight International Plasma Awareness Week this webinar will feature an NBA update about the transition of plasma products and access to SCIg\, the plasma journey from donor to recipient managed by Lifeblood\, and tips to share your story to promote plasma donation. \nKeynote Speakers \n\nJo Cameron National Blood Authority – Director Commercial Blood Products\nSally Deveson Lifeblood ACT – Community Relations Officer\n\nIDFA Member Insights \n\nHayley Teasdale – Lifeblood Volunteer and IDFA member
URL:https://idfa.org.au/event/october-pi-education-webinar-plasma-update-and-donation-advocacy/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/09/Webinar-ZoomWebsite-Banner-1.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230926T190000
DTEND;TZID=Australia/Melbourne:20230926T200000
DTSTAMP:20230904T222655Z
CREATED:20230904T222655Z
LAST-MODIFIED:20230904T222655Z
UID:10000005-1695754800-1695758400@idfa.org.au
SUMMARY:September PI Education Webinar:  Newborn Screening for SCID – A Brave New World
DESCRIPTION:After many years of campaigning\, the Australian government has committed to implement SCID testing into the Newborn Screening (NBS) Program across the country\, and most states and territories are already underway. This webinar provides important updates for both patient members and health professional working with parents of babies with an abnormal SCID NBS test result. \nKeynote Presenter: Dr Kahn Preece\, NSW Paediatric Immunologist \nMember Insights: Louise Grant
URL:https://idfa.org.au/event/september-pi-education-webinar-newborn-screening-for-scid-a-brave-new-world/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230829T190000
DTEND;TZID=Australia/Melbourne:20230829T200000
DTSTAMP:20230801T061527Z
CREATED:20230713T040345Z
LAST-MODIFIED:20230801T061527Z
UID:10000004-1693335600-1693339200@idfa.org.au
SUMMARY:August PI Education Webinar: Young Adult Members Transitioning into Adult Care
DESCRIPTION:Young Adult Members Transitioning into Adult Care \n\nAre you a young adult member moving into the adult health care system?\nAre you a carer member wanting to know how to support a young adult making this transition?\n\n\nWe know that often the move into the adult care healthcare system can be particularly stressful and can cause a great deal of anxiety. You may need to start accessing different clinicians possibly in different locations and develop new relationships with less parental involvement. You may also also encounter clinicians who are not very experienced working with young people. Then there’s the expectation to be much more responsible for your treatment plan\, ask questions and self-advocate if you feel your needs are not being met. \nIn this webinar we are inviting Immunologist Dr Alisa Kane and young adult member Zoe Parry to cover some of the key changes you can expect moving into the adult healthcare system\, some common issues young people may face\, areas for self advocacy\, and tips and strategies for a smoother transition.
URL:https://idfa.org.au/event/august-pi-education-webinar-yams-transitioning-into-adult-care/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230727T190000
DTEND;TZID=Australia/Melbourne:20230727T200000
DTSTAMP:20230626T005339Z
CREATED:20230613T024145Z
LAST-MODIFIED:20230626T005339Z
UID:10000003-1690484400-1690488000@idfa.org.au
SUMMARY:PI Education Webinar - GP Awareness of Immunodeficiencies
DESCRIPTION:Many members knew something was wrong despite their GP prescribing more antibiotics or other treatments for infection. Members self-advocated for a blood test\, or referral\, sought a second opinion or took more prescribed medications only to find their infection remained for a long time or never really went away. \nUnfortunately\, GPs can often mistake the warning signs of an immunodeficiency\, leading to complications from ongoing infection\, avoidable hospitalization and deteriorating mental well-being. \nOur next webinar is for both GPs and community members to support earlier detection in our community and promote quality of life: \n\nWhat signs can GPs look for?\nWhat can GPs do to support earlier diagnosis?\nWhat can members do to work with their GP to self-advocate and support awareness?\n\nPlease feel free to send any questions or tips to share as a patient working with your GP to IDFA at info@idfa.org.au in advance of the Webinar. Please let us know if you’re interested in briefly presenting your journey with our members.
URL:https://idfa.org.au/event/pi-education-webinar-gp-awareness-of-immunodeficiencies/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://idfa.org.au/wp-content/uploads/2023/06/Webinars-and-Event_Banners-6.png
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20230627T190000
DTEND;TZID=Australia/Melbourne:20230627T200000
DTSTAMP:20230605T133945Z
CREATED:20230525T041521Z
LAST-MODIFIED:20230605T133945Z
UID:10000002-1687892400-1687896000@idfa.org.au
SUMMARY:PI Education Webinar - Travel Smart with Immunodeficiency
DESCRIPTION:We know that for many members travelling can be an immense challenge. However\, some have been able to enjoy travelling safely with the right planning and support. \nOur next PI Education webinar will include members sharing their travel stories and tips\, and key need-to-know information from a travel industry advocate for people with disabilities. \nPlease let us know any questions and areas of interest to cover in the webinar such as: arranging medications\, immunoglobulin\, and SCIg consumables\, managing medical equipment\, planning an itinerary to manage fatigue\, managing pain or mobility issues\, and making suitable accommodation and travel arrangements. \nIf you would like to share any travel tips with members to stay well and get the most out of their trip – Please reach out! We would love to add your tips to our webinar or\, if interested\, you can be a presenter in the webinar! \nPlease feel free to send any questions to IDFA at info@idfa.org.au in advance of the Webinar so that we can ensure that we are able to provide you with a response.
URL:https://idfa.org.au/event/pi-education-webinar-travelsmart-with-ids/
LOCATION:Online via Zoom\, Australia
CATEGORIES:Webinar
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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