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X-WR-CALDESC:Events for IDFA
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DTSTART;TZID=Australia/Melbourne:20240919T190000
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DTSTAMP:20240807T230243Z
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UID:10000354-1726772400-1726776000@idfa.org.au
SUMMARY:The Journey Together for Universal SCID NBS
DESCRIPTION:We are inviting everyone to join us for the NBS SCID Campaign Commemorative event\, to highlight the achievement of SCID NBS throughout Australia and to recognise the key role of advocates. \nWe will also reflect on the power of organisational collaboration within the Australian rare disease sector and stakeholders to achieve a pivotal result for early diagnosis and treatment for Australians. \nWe will hear from key IDFA member advocates and look back on the IDFA campaign journey that made a real difference to the lives of Australian babies and their families moving forward. \nMedical – Advocate Speakers:\nDr Melanie Wong – Paediatric Immunologist\nGeraldine Dunne – CNS Immunology \nStakeholder – Advocate Speakers\nAusPIPs – Emily Edwards (Recording)\nRare Voices Australia – Louise Healy (Recording) \nMember – Advocate Speakers:\nJenny Tyrrell\nJaveria Ahmad\nLouise Grant\nSarah McArthur
URL:https://idfa.org.au/event/the-journey-together-for-universal-scid-nbs/
LOCATION:Online via Zoom\, Australia
ATTACH;FMTTYPE=image/jpeg:https://idfa.org.au/wp-content/uploads/2024/08/Webinar-ZoomWebsite-Banner-2024.jpg
ORGANIZER;CN="Immune Deficiencies Foundation Australia":MAILTO:info@idfa.org.au
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