Use Your Voice – Self Advocacy

To celebrate World PI Week, IDFA has joined forces with Blue Wren Advocacy to launch the Self Advocacy Toolkit. The toolkit empowers individuals with immunodeficiencies and their families to become more effective self-advocates and better navigate the complexities of managing these rare diseases.

Guest speakers will share their experiences with self-advocacy and discuss how the toolkit can help. The co-creator of the toolkit will also be on hand to provide insights into the creation and development of this invaluable resource.

Attendees will have the opportunity to hear from members of the community who have either used self-advocacy techniques to improve their health outcomes and quality of life or feel that these tools will be valuable for them and others going forward. By learning from these experiences, participants will gain a deeper understanding of how self-advocacy can positively impact their lives and those of their loved ones.

The Self-Advocacy Toolkit is a comprehensive resource that provides individuals with a way to take control of their healthcare journey.

Guest Speakers include:

• Christine Jeffery – Vice President IPOPI, IDFA National Patient Advisory Panel Member and CIRCA Board Member
• Louise Healy – Education and Advocacy Manager at Rare Voices Australia
• Geraldine Dunne – Clinical Nurse Consultant Immunology & Infectious Disease at Sydney Children’s Hospital Network
• IDFA Members