by idfa | Dec 1, 2022 | Member Meeting Wrap-up, News
It was fantastic to see some of our members at our QLD Member Reunion at the Rydges Hotel on the 19th of November. At the event, guests heard from two IDFA members about their experience living with an immunodeficiency, as well as IDFA Board and Medical Advisory Panel...
by idfa | Aug 19, 2022 | News
Carolyn Dews, IDFA CEO, Takes on Ride500 Challenge To celebrate the once in a lifetime UCI 2022 Road World Championships taking place in Wollongong, Cancer Council NSW is bringing together Wollongong Bosses through their Ride500 campaign to go head-to-head in a...
by idfa | Jul 19, 2022 | News
Young Adult Members Conference: 23 July 2022 Itinerary Saturday 23 July, 9am to 3pm 9am-9:05am: Welcome. Acknowledgement of Country. 9.05am-9:15am: Introductions. Presenter: Carolyn Dews, IDFA CEO. 9.15am-9:45am: 3 x Young Adult Members share their health journey...
by idfa | Apr 5, 2022 | News
2022 World PI Week (22-29th April) What is World PI Week? World PI Week offers an opportunity to inform and educate health policy-makers, schools and families, and the general public about primary immunodeficiencies (PI) to drive the earliest possible diagnosis and...
by idfa | Feb 11, 2022 | News
2022 Rare Disease Day What is Rare Disease Day? Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Since its...
by idfa | Feb 3, 2022 | News
Managing your child’s return to the classroom This information has been provided by IDFA member, teacher and mum of two, Bianca. You can read more about Bianca’s story here. Bianca is one of our friendly family support group moderators. If you are...
