by blick | Feb 15, 2021 | News
Rare Disease Day – 28 February 2021 Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’...
by blick | Feb 15, 2021 | News
Update to Member Services due to COVID-19 Due to the impact of COVID-19 we have already started to change our Business Model so that we are able to provide our education, awareness and advocacy campaigns online, continuing the development of innovative programs for...
by blick | Sep 9, 2020 | Story
Emergency Department, drowsy and increasingly delirious. Doctors began blood tests and found that she had extremely low platelets. Her absolute count was 16,000 so she was given 4 units of platelets overnight in the High Dependency Unit. CT scans showed Sharon had 3...
by blick | Aug 28, 2020 | Event
Welcome to IDFA Vestibulum ac diam sit amet quam vehicula elementum sed sit amet dui. Vestibulum ante ipsum primis in faucibus orci luctus et ultrices posuere cubilia Curae. Donec velit neque, auctor sit amet aliquam vel, ullamcorper sit amet ligula. Vivamus magna...
by blick | Aug 27, 2020 | Event
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