Share Your Story
Every member has an important story to share
Each person brings a unique history and outlook to their diagnosis journey, and there is so much value in sharing your lived experience and insights with others.
By sharing your story, you’ll be empowering others living with a similar diagnosis and/or lifestyle and helping IDFA continue to highlight the variety, diversity, and vibrancy of our IDFA community.
Share Your Story Here
This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.
Take a look at some of our latest member stories below
Arlo’s Story
Arlo’s health journey began in 2019 when he was diagnosed with Schimke Immuno-Osseous Dysplasia (SIOD), a rare multisystem disorder inherited in an autosomal recessive pattern. Although faced with challenges, eight-year-old Arlo embodies joy, determination, and the spirit of adventure. This is his story.
Christopher’s Story
In the heart of Adelaide, ten-year-old Christopher brings warmth and kindness to everyone he meets, his energy and compassion leaving a lasting impact. This is his story.
Austin’s Story
In the vibrant city of Queensland, five-year-old Austin shines as a beacon of joy and resilience. Austin’s health journey began when he was just three years old. This is his story.