Share Your Story

Every member has an important story to share

Each person brings a unique history and outlook to their diagnosis journey, and there is so much value in sharing your lived experience and insights with others.

By sharing your story, you’ll be empowering others living with a similar diagnosis and/or lifestyle and helping IDFA continue to highlight the variety, diversity, and vibrancy of our IDFA community.

Share Your Story Here

This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.

Take a look at some of our latest member stories below

Steve’s Story

Steve’s Story

If it hadn’t been for his plasma donation, Steve wonders if he would have ever discovered his immunodeficiency. This is his story…

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Kelly’s Story

Kelly’s Story

Kelly’s second child was born only 18 months after her first, and from birth, she could tell something was not quite right. This is her story…

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Carol’s Story

Carol’s Story

Throughout her life, she has lived in different places and visited may countries, which has changed her life in many ways. This is her story.

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