Member Stories
IDFA members share their experience of living with immunodeficiency.
Real People. Real Stories. In their own words.
Lisa’s Story
Lisa always knew she wanted to have children but thought it wasn’t possible due to her genetic condition Chronic Granulomatous Disorder (CGD). Here is her story…
Sharon’s Story
Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Here is her story…
Tyson’s Story
As a baby, Tyson’s ongoing infections were beginning to worry his family. After several hospital admissions they insisted on further testing which resulted in the diagnosis of X-linked Chronic Granulomatous Disease, a rare genetic disease. Here is his story…