Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Dale’s Story

Dale’s Story

Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.

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Ben’s Story

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where the journey of a carer began for Ben…

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Jack’s Story

Jack’s Story

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’s story…

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Gloria’s Story

Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…

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Oli’s Story

Oli’s Story

As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…

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Bianca’s Story

Bianca’s Story

With two children, both suffering from recurrent infections and various other illnesses, Bianca instinctively knew there was an issue. Her is her story…

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