Member Stories
IDFA members share their experience of living with immunodeficiency.
Real People. Real Stories. In their own words.
Gloria’s Story
Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…
Oli’s Story
As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…
Bianca’s Story
With two children, both suffering from recurrent infections and various other illnesses, Bianca instinctively knew there was an issue. Her is her story…
Lisa’s Story
Lisa always knew she wanted to have children but thought it wasn’t possible due to her genetic condition Chronic Granulomatous Disorder (CGD). Here is her story…
Sharon’s Story
Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Here is her story…
Tyson’s Story
As a baby, Tyson’s ongoing infections were beginning to worry his family. After several hospital admissions they insisted on further testing which resulted in the diagnosis of X-linked Chronic Granulomatous Disease, a rare genetic disease. Here is his story…