Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Arlo’s Story

Arlo’s Story

Arlo’s health journey began in 2019 when he was diagnosed with Schimke Immuno-Osseous Dysplasia (SIOD), a rare multisystem disorder inherited in an autosomal recessive pattern. Although faced with challenges, eight-year-old Arlo embodies joy, determination, and the spirit of adventure. This is his story.

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Christopher’s Story

Christopher’s Story

In the heart of Adelaide, ten-year-old Christopher brings warmth and kindness to everyone he meets, his energy and compassion leaving a lasting impact. This is his story.

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Austin’s Story

Austin’s Story

In the vibrant city of Queensland, five-year-old Austin shines as a beacon of joy and resilience. Austin’s health journey began when he was just three years old. This is his story.

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Steve’s Story

Steve’s Story

If it hadn’t been for his plasma donation, Steve wonders if he would have ever discovered his immunodeficiency. This is his story…

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Kelly’s Story

Kelly’s Story

Kelly’s second child was born only 18 months after her first, and from birth, she could tell something was not quite right. This is her story…

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Carol’s Story

Carol’s Story

Throughout her life, she has lived in different places and visited may countries, which has changed her life in many ways. This is her story.

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