Member Stories

IDFA members share their experience of living with immunodeficiency.

Real People. Real Stories. In their own words.

Nic’s Story

Nic’s Story

Over the years, Nic has had many doctors turn her away for being ‘too complex a case’ however her now doctor is the perfect person to help her! This is her story…

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Michelle’s Story

Michelle’s Story

In 2020, when Michelle celebrated her 56th birthday she was finally diagnosed with Hypogammaglobulinemia after years of unknown causes to her being unwell. This is her story…

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Vanessa’s Story

Vanessa’s Story

On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…

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Dale’s Story

Dale’s Story

Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.

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Ben’s Story

Ben’s Story

Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where the journey of a carer began for Ben…

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Jack’s Story

Jack’s Story

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’s story…

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