The Journey Together for Universal SCID NBS

We are inviting everyone to join us for the NBS SCID Campaign Commemorative event, to highlight the achievement of SCID NBS throughout Australia and to recognise the key role of advocates.

We will also reflect on the power of organisational collaboration within the Australian rare disease sector and stakeholders to achieve a pivotal result for early diagnosis and treatment for Australians.

We will hear from key IDFA member advocates and look back on the IDFA campaign journey that made a real difference to the lives of Australian babies and their families moving forward.

Medical – Advocate Speakers:
Dr Melanie Wong – Paediatric Immunologist
Geraldine Dunne – CNS Immunology

Stakeholder – Advocate Speakers
AusPIPs – Emily Edwards (Recording)
Rare Voices Australia – Louise Healy (Recording)

Member – Advocate Speakers:
Jenny Tyrrell
Javeria Ahmad
Louise Grant
Sarah McArthur