Share Your Story
Every member has an important story to share
Each person brings a unique history and outlook to their diagnosis journey, and there is so much value in sharing your lived experience and insights with others.
By sharing your story, you’ll be empowering others living with a similar diagnosis and/or lifestyle and helping IDFA continue to highlight the variety, diversity, and vibrancy of our IDFA community.
Share Your Story Here
This is a self-paced, four-part workshop, where members are sent an email each week (for four weeks), prompting them to answer a short set of questions. At the end of the workshop, participants are presented with their stories.
Take a look at some of our latest member stories below
Alice and Eva’s Story
When baby Eva was just four months old, her mum Alice and dad Dan noticed something wasn’t right. What began as simple formula feeding quickly turned into months of unexplained symptoms. By five to six months, Eva was experiencing persistent diarrhoea, yet every stool sample came back clear. Their GP couldn’t find an answer.
Alison’s Story
For Alison, caring is not just something she does—it’s who she is. As a mother to two teenage daughters living with Common Variable Immunodeficiency (CVID), her life is stitched together with illness, resilience, and a deep love for her husband and daughters.
Shaya’s Story
As a paediatric intensive care nurse and mother, Shaya balances her career with caring for her young son, who lives with hypogammaglobulinemia and other complex health needs. Daily life is filled with therapies, appointments, and careful health monitoring, alongside the financial strain of ongoing treatments.